Thanks, Janejane,

I have heard of the vitamin c a friend of mine swears by them and she has RSD and has been through hell. She is much better after much suffering and she swears by those vitamin shots. Thanks for the info.

It was quite a blow. Normal 1 second and the next a mess. Someday's I think if I did not find those doctor where would I be? When I finally made the commitment to HSS, my arm was a mess, I would of lost functioning completely if I didn't do what I did there. And honestly I was afraid. All the talk of all the surgeries with the RSD on board then came the ketamine not once but 3x's, traveling to Philly for boosters, that Dr. getting involved. Then came the legal fight which I don't know which was worse the surgeries or the trial, which I won. In NJ the law is very clear on slip and falls, thank god my husband went back the next morning and took pictures, they never even cleaned the blood up or the area where I fell. So that went on for 2 years, then came the disability fight, again took 2 years but I got it finally.

I had a wonderful career as a software consultant at one point working as a IBM/VAR which just was a wonderful experience and I loved it and miss it so much. Today I call myself a "Independent Business Consultant" it a fancy work for a traveling bookkeeper. But Social Security told me when I filed I could at least work PT, so I immediately went out and started this. They allow you to make a certain dollar amount before they deduct from your check so I just watch the dollars I make. Social Security does not care if you work 80 hours a week just don't go over that dollar amount. I find that so strange, but it is what it is.

But if anything good came out of it was a more appreciation of life, not just for me but for my husband and children. We lived the "american dream" and then had to adjust everything and it taught us all a very important lesson and today I think we a better people and a stronger family.

Thanks again,

gabbycakes

Hi Gabby Cakes!

Thanks for your reply! It makes me so happy to hear that you are doing so much better with the help from HSS. Life with RSD can be unbearable enough, but not having a good team of doctors and caring practitioners can make it so much worse. It really sounds like you have been through so much. It was definitely so very smart to take those pictures after you fell. Pictures make all the difference in the world!! I am glad they were careless enough not to clean up because that helped you later on.

It's great that you can still work but never doubt too much that you will be able to go back to your old job. This thing RSD can be beaten. I really believe it. I just think of all those patients who had RSD a hundred, a thousand years ago, and had nothing to help them. AT least now, the condition is recognized.

Please let me know who you think are the best doctors at HSS. If you want you can PM me with the names. I am always looking for good doctors because my docs are really nice, but they dont have enough expereince with RSD and so I find myself looking for true specialists who know what they are doing.

I send you a big, warm, gentle hug!!!

Have a great weekend!