[DianeKem]

I am new to this group and this is my 1st post. I have RSD 23 plus years in my right hand arm shoulder... I was told that RSD doesn’t spread only you might have a mirror image of the pain. Really, No one understands RSD. Only folks that have RSD can really understand what we live through each minute of every day. When asked to explain your pain other than burning pain the rest I still after 23 years find it so hard to put the pain of RSD into words that folks Doctors can really understand. And for me yes it spread it has taken over my whole upper body; my concerns are in my chest lungs. If I tell my doctor this he might cut me lose and that’s what stops me from saying anything to him. Scared to speak to your doctor because you know that they really don’t want a patient they can’t cure. I am very worried this time, I tried to fix something and I hurt my left shoulder. That flared up the RSD For the past 3 weeks the pain is spreading to my whole left arm hand worse than ever. At times the RSD takes over my whole body, I find myself saying. It’s really sucks to be me right now, More times than I can count. I also have tinnitus ringing of the ear 2 incurable diseases isn’t life grand, Smile yes sarcasm. A must have, Laughter a must. I came here today because I have no one to talk to about this. I needed to get it out No one wants to spend time with you if all you do is talk about your pain. I hold it in to much for to many years, So thanks for reading my words today. I also would love to help anyone who needs a lift up on how to cope with RSD. I guess I am an old pro on living in RSD pain and its never ever silent from the sounds in my head, ring a ding ding. I am here if you need me. As well as I know you are there in case I need you. we are needy aren’t we. God Bless all who suffer. Pain is pain and when it’s your pain it matters.