Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-31-2012, 11:08 PM #361
Joydee Joydee is offline
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Quote:
Originally Posted by debbiehub View Post
Well it's been over three weeks two times a day and nothing, Nothing works for me! So frustrating
Hi Deb,

I am so sorry you have not felt a reaction to TDCS but please keep
Trying and keep in mind there are other protocals to try. I don't
know what the stats are but unlikely a person responds to every
protocal.

Joydee
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Old 06-03-2012, 06:48 AM #362
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Originally Posted by debbiehub View Post
Well it's been over three weeks two times a day and nothing, Nothing works for me! So frustrating
Hang in there Deb. When I get frustrated I try to focus on what I do have and can do instead of what is not going well. When I was in a wheelchair I had many a dark day.

When ever I caught myself saying or thinking "nothing works for me" I knew I had to immediately change my thinking. Changing your thinking can make a big difference in how you manage your illness.

For instance, it is wonderful that you can still work. Try to focus on the things you are able to do and add new small challenges each day. The tDCS is currently not providing you relief. That does not mean that it won't eventually work. Additionally, you have the best doc available to treat you with it.

Please don't loose hope. I just bet that your doc has some additional tricks up his sleeve if the current course of treatment does not yield improvements.
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Old 06-03-2012, 07:02 AM #363
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Default How are you doing Mike?

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Originally Posted by ballerina View Post
More news! Mike asked me to let everyone know that he has been MIA due to being without a computer but wanted me to let everyone know that he has recently begun tDCS and after only ten days the edema which has plagued his ankles for years is gone!!!!!!!! He is thrilled beyond words. I am just as excited given what he has been through over the years. Mike is another example of Old and Cold CRPS responding to tDCS. He is taking a temporary break while he irons out some equipment issues but expects to be up and running again with tDCS treatments very soon. His success reminds me of my first experience with tDCS and the decrease in swelling I have by the fifth day. I remember thinking that just that symptom relief alone was enough.
(Yes Catra, you bet I have become greedy)


Hey there Mike. Hope your computer issues are cleared up by now.

Please tell us how things are going with your tDCS treatments. Could you share what you did to tame the edema beast?

What equipment issues did you have with the tDCS and how did you fix it?

Please don't be a stranger. I love hanging out with the ladies but sure would like some feedback from another guy!

Hope you are having continued success with your tDCS treatments.
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Old 06-04-2012, 02:58 PM #364
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Default Need a little clarification on electrode placement

I have assembled all the necessary equipment and have been using the tdcs treatment for about a week. I have read through this thread at least 3 times and am still a tiny bit confused if I am doing the electrode placement correctly.

I want to treat my right foot. From what I can see on the homunculus images, that area is rather high up on my head. So rather than placing the anode (the positive red) electrode just above my ear, I am assuming I should place the electrode towards the top of my head. Is this correct?

Also my main confusion is what side of the head to put the anode on if I am trying to treat my right foot. I have been placing it on the right side of my head with the cathode above my left eye but I have a feeling I am doing this backwards. Should I be treating my right foot by placing the anode on the left side of my head?

I do plan on trying both hemispheres- 2 weeks with the anode on one side and 2 weeks with the anode on the other side- once I see some results. This is because I have milder symptoms on my left side as well.

Any clarification is much appreciated.
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Old 06-04-2012, 07:12 PM #365
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Originally Posted by reluctant@thetable View Post
I have assembled all the necessary equipment and have been using the tdcs treatment for about a week. I have read through this thread at least 3 times and am still a tiny bit confused if I am doing the electrode placement correctly.

I want to treat my right foot. From what I can see on the homunculus images, that area is rather high up on my head. So rather than placing the anode (the positive red) electrode just above my ear, I am assuming I should place the electrode towards the top of my head. Is this correct?

Also my main confusion is what side of the head to put the anode on if I am trying to treat my right foot. I have been placing it on the right side of my head with the cathode above my left eye but I have a feeling I am doing this backwards. Should I be treating my right foot by placing the anode on the left side of my head?

I do plan on trying both hemispheres- 2 weeks with the anode on one side and 2 weeks with the anode on the other side- once I see some results. This is because I have milder symptoms on my left side as well.

Any clarification is much appreciated.
I think...and someone please correct me if I am wrong...that you want the anode on the left side if you are treating your right side. It should be the opposite of the side you are treating.
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Old 06-04-2012, 07:38 PM #366
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I am a little confused. How are you determining where on you head you are placing the electrodes, right or left not with standng?
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Old 06-04-2012, 09:04 PM #367
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I am a little confused. How are you determining where on you head you are placing the electrodes, right or left not with standng?
I checked out the homunculus charts and saw that the feet were to the top of the head. Knowing that the pads are 3" wide and there is some leeway in positioning, I positioned the anode according to the measurements I saw on one of the posted videos- about an inch in front of the midline (from ear to ear) and about 2" above the ear- not right above the ear.

I know you recommended actually visiting Dr. Fugedy but I'm trying to save what reserve money I have to put towards possible Ketamine infusions. Since I'm relatively new to this disease, I'm trying to hit it as hard and as fast as I can.
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Old 06-04-2012, 09:16 PM #368
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Chat Changing protocol

Spoke to fugedy and we r trying the occipital bone and opposite side of head on the motor corteX. he wants me to wait til Friday ...hope it helps!

Deb
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Old 06-05-2012, 05:52 AM #369
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I will keep my fingers crossed for you Deb...hope this one shows some positive results!

BTW...my first day of work yesterday went REALLY well. I think I really lucked out and got placed with an excellent team of people. I am probably over-prepping with all the stuff I am doing to get ready for work in anticipation of elevated pain levels but I figure it's better to be over prepared than not prepared enough, right?
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Old 06-05-2012, 09:55 AM #370
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Quote:
Originally Posted by debbiehub View Post
Spoke to fugedy and we r trying the occipital bone and opposite side of head on the motor corteX. he wants me to wait til Friday ...hope it helps!

Deb
Hi Deb,

Good luck on the new placement.
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