Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 02-29-2012, 10:04 AM #11
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Originally Posted by bluebubble2 View Post
Hello everyone, I'm from the UK

My sister has had CRPS for a year now from banging her foot against something hard by accident. I don't know the specifics of her CRPS and I don't know if it's spread either, she's been keeping quietly to herself about the condition and only recently I've learned how horrific this condition actually is. I don't know if it's spread anywhere recently (she seems to be in ache/pain moreso lately)

I want to help her get better so I suggested to her she ask her doctor about tDCS and TENS machines (and perhaps low dose ketamine infusions athough I don't know specifics about these and I'm not sure she can actually afford all of that). Maybe just tDCS and TENS will be good enough... I hope :/ Maybe even mirror therapy? I've read that it has caused spreads and such so I'm not sure if I want her to risk it. Now knowing that spreads are a fresh case, I'd prefer if she got her tDCS and TENS first I suppose

One thing I'm definitely curious about is if TENS units (sorry, slightly off topic) have ever caused spreads or whatnot although generally they seem like they're safe?

Are there good online stores that you guys who have had success used that ship tDCS and TENS units internationally (to UK ;p)? I would love to know, I just want to help her and get her life and happiness back
I use a TENS unit with much success and I have never heard of any issues with them causing spread. BUT...they do not work for everyone and for some people using a TENS unit can actually be more painful (maybe cause a fare but not spread...at least from what I have heard). That tends to be how things go with CRPS...but considering how non invasive it is and the possibility of success I definitey think it is worth a shot for everyone...much as I feel tDCS should be tried by everyone before doing anything more invasive.

I don't know what companies might ship to the UK or if there are any UK based medica supply stores where you might get a TDCS unit. It might help in your search to know that the unit that is used for tDCS treatments is an Iontophoresis Delivery Unit...and you will have to buy different lead wires and electrodes to convert it for tDCS treatments.
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