Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 12-06-2011, 08:59 AM #1
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Originally Posted by AintSoBad View Post
Oh my!
Is that what's doing it?

Jimbo, I'll try to look that up for you tomorrow!
It's a great med, just be VERY careful!

Pete
Hi Pete, does your heart race like crazy sometimes too? I wonder if this is a RSD thing or a med thing? Or both? sheesh...
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Old 12-06-2011, 11:18 AM #2
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My heart rate is very high these days...ever since the pain got really bad again. I wasn't on any meds so it's not med related for me. But the doctors think it's my body's reaction to the pain...or so they have told me. It's pretty normal for my heart rate to be 150-160 even at rest...I don't want to know what it has gotten to when I am moving around.
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Old 12-06-2011, 11:48 AM #3
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My heart rate is very high these days...ever since the pain got really bad again. I wasn't on any meds so it's not med related for me. But the doctors think it's my body's reaction to the pain...or so they have told me. It's pretty normal for my heart rate to be 150-160 even at rest...I don't want to know what it has gotten to when I am moving around.
Interesting!! I just started Cymbalta, gradually making it up to 40mg per day... I too, had a racing heart a few times... Thought it was just my short wired RSD body.. And Catra said... No meds and it's happening... Gotta wonder if it is our RSD ...the Cymbalta does make me tired and usually, my tummy wont allow any med.. So far so good.. without it I'm feeling foggy brained and some OCD going on.. Hit two birds with one stone..anxious and pain..

Hugs, Kathy
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Old 12-06-2011, 11:59 AM #4
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The burning pain is less but the crushing pain is still high. Today is raining and I went out to the P.O. and now my leg and arm hurt with a feeling of being in a press. I usually have burning pain and I'm aware of some but it's less than usual.
I don't notice my heart race but I have dry mouth and I'm hungry more often.
My neurologist warned me that my appetite will increase and it is.
I have to keep my food supply low or I'll eat everything...
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Old 12-06-2011, 12:20 PM #5
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jimbo
i know that feeling i eat everythimg anymore. the crushing pain is when i want my foot cut off. not it me yet. but its burning. so I know the rain is coming and major barametric changes. (beesting feeling is my burn)
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Old 12-07-2011, 11:06 AM #6
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I have been on 60 of Cymbalta with 300 of Lyrica and it works very well. Much less burning. I also take meloxicam for the bone pain as well as Flexoril for the muscle spasms. The combo has worked well. I had a spinal cord stim implanted last March and that has REALLY given me hope! My hand functions (most of the time) now, before the stim I was unable to open it. Now I can type mostly with one hand but my left can hit a button every so often. Now I'm trying to piece my life back but if I can't find a job soon we are going to lose our home. I am going back to school to finish my Bachelors in Social Work. I want to help others like us.
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Old 12-07-2011, 02:21 PM #7
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stressed out,
I am sorry to hear your going through such a financial hardship. I can't find a job to do from home either so I have been looking in getting my bsn then on for my masters. Good luck!
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I have been on 60 of Cymbalta with 300 of Lyrica and it works very well. Much less burning. I also take meloxicam for the bone pain as well as Flexoril for the muscle spasms. The combo has worked well. I had a spinal cord stim implanted last March and that has REALLY given me hope! My hand functions (most of the time) now, before the stim I was unable to open it. Now I can type mostly with one hand but my left can hit a button every so often. Now I'm trying to piece my life back but if I can't find a job soon we are going to lose our home. I am going back to school to finish my Bachelors in Social Work. I want to help others like us.
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Old 12-07-2011, 03:08 PM #8
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So sorry to hear of all your problems Stressedout. This monster takes us through a lot more than we realize at times. My heart goes out to you. I hope you find the relief you need soon. I know that everyone who reads your post like me sends you prayers and thoughts of help...
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Old 12-09-2011, 12:38 AM #9
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Hi Pete, does your heart race like crazy sometimes too? I wonder if this is a RSD thing or a med thing? Or both? sheesh...

Sometimes Karen, I'm not sure what it is, I get very shaky sometimes too (tremor).. If it gets bad, diazepam helps, but I don't really know what causes it? Hope you feel well!

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Old 12-09-2011, 05:44 PM #10
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Finally!
It took some digging, but at least I was smart enough (for a moment) to flag this article in my email client.
Here's the addy.
Health Central sends out a newsletter (email) every week or two, and of course some are more helpful than others. So, while you're there, (this addy will only take you to this one article) click on the 'home' page button, and look around.
You may decide that you'd like to sign up for their newsletter.

I hope this might help...

http://www.healthcentral.com/chronic...balta/?ic=6042


pete
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