Hello, and I am sure sorry your daughter has to go through any of it. However I have had two Katamine infussions for my cervical area C3-7. This proceedure did help me with the pain. I also was satisfied that it didn't hurt administering it, and I got good pain relief after. I would do this for myself again if I ever needed it. I had no side effects, no headaches. This was my experience. ginnie

The reality is people that experience significant relief from the SCS return to their lives, and those that have a bad experience are going to be more vocal. Does the idea of spread from a SCS scare me? Yes. Very much so. But, I thought one of the previous arguments on the board about the efficacy of the SCS was that the data was untrustworthy because the trials were done with young adults and therefore their success rate won't be as high in adults.

Many docs, especially pain clinic docs, have an incentive to recommend certain treatments and medications due to their fear of Multiple law enforcement agencies.

For the OP--the more aggressive the treatment and the sooner you can get it for your daughter, the better. She has a good chance to go into remission with one of the inpatient children's programs. It might take more than round.

I had lidocaine infusion but not ketamine. I did not get any benefit from the lidocaine. After my pain was high but it could of been just a flare. I did not have the side effects stated. the nurse was there the whole time asking me though if I felt swelling or not ok.
I do agree from all the doctors I saw that starting with least invasive to more if it does not work is the way to go. I had in the start docs who wanted to do big procedures without trying less and I am glad I did not because some lesser ones sent me backwards as what was supposed to settle the pain increased mine.
I hope you can find what works for your daughter