Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 02-13-2012, 08:08 PM #1
cinders999 cinders999 is offline
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Join Date: Feb 2012
Posts: 39
10 yr Member
cinders999 cinders999 is offline
Junior Member
 
Join Date: Feb 2012
Posts: 39
10 yr Member
Help Hi, this is a first for me

This is the first time I've posted on a forum, I didn't even know they existed. I've not had broadband for long, just pay as you go dongle.

I've had rsd in my left arm for 16 years now, it started in the hand in '96 but wasn't diagnosed till '98 by which time it was really bad & was starting to spread. Three years ago I bumped my knee & got water on it, the knee cleared up but gave me a few problems for a while then went. A year later I started getting pain in my hip, that also eased a little with good pain killers. I noticed I wasn't walking properly about 6 months ago, I have rsd in my left foot now too. The foot has clawed the same as my hand. All the research I'd managed to do said it could spread but my consultant didn't seem to think it could. I have a new consultant now, he's digging his heals in a little about pronouncing rsd in the leg but he's treating me for it.

I'd love to know if anyone has any tips for trying to keep my foot straight, at the moment it wants to point east to west instead of north to south, & its rolling under, I'm walking on the outside part of the foot. I've bought proper walking shoes, on the advice of my podiatrist, but the foot still tries to turn in the shoe.
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