Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 01-14-2012, 09:45 PM #8
kathy d kathy d is offline
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Join Date: Nov 2006
Posts: 327
15 yr Member
kathy d kathy d is offline
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Join Date: Nov 2006
Posts: 327
15 yr Member
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Hi Lobster and All,
I agree. Just when you are trying to calm down at night to sleep the twitching gets crazy and the burning pain goes crazy too. I agree with Lobster and her hubby that you have to laugh at all the stuff we go through (and praying helps me too) or else you will be bonkers real soon from it all. I also try not to let anything negative get near me as it seems to bring me down.

Poor Ballerina...you have rsd pain and they sent you for a psych eval??? What idiots. RSD is so painful and if these docs could feel what we feel they would be in agony crying like babies curled up on the floor!!!

Macartums...I hate to say this and pray that I am wrong but it sounds like the rsd is moving around. I have full body for almost 7 years and it can go internally where certain body parts hurt so much and then the next day it is externally...or both. It is like electrical currents moving up and down our bodies going where it wants to go. And we have no control over it. I do try meditating to bring my pain down...it is probably one of the only things that has helped me over the years...along with praying. Good luck to you all and hope you have a less pain day tomorrow.
kathy d
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