Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 03-08-2012, 06:37 PM #1
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Thank you so much for your information. I do not as of yet have many of the other symptoms so mom and I are hopefull that it is not RSD, but still worried. I'm waiting now to hear back about seeing another doctor through the guy I have been seeing. The worst thing with workers-comp stuff is the waiting. Tomorrow I start a new med to target nerve pain. Mom and I talked today and she said that we'll see if the new meds help before we start to get too worried. Again thanks soo much and I'll def be back here to learn as much as I can.
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Old 03-08-2012, 08:29 PM #2
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Quote:
Originally Posted by Blueangelgal View Post
Thank you so much for your information. I do not as of yet have many of the other symptoms so mom and I are hopefull that it is not RSD, but still worried. I'm waiting now to hear back about seeing another doctor through the guy I have been seeing. The worst thing with workers-comp stuff is the waiting. Tomorrow I start a new med to target nerve pain. Mom and I talked today and she said that we'll see if the new meds help before we start to get too worried. Again thanks soo much and I'll def be back here to learn as much as I can.
You do not need to have all of the symptoms for a proper diagnosis. It is a VERY unique condition. While there certainly are symptoms that are common, don't fall for conventional wisdom. There is not a lot "conventional" about CRPS.

What medication are you going to start?

I urge you to NOT be complacent. It is very easy to do. It took me 1 year to get a diagnosis and by then, the CRPS had been firmly set. In hindsight, I of course wish I would have been more aggressive in seeking second, third and fourth opinions. Which is what I eventually had to do to get a proper diagnosis. Time is certainly of the essence with any potential CRPS case.

Never be afraid of hurting a doctor's feelings by getting multiple opinions. A good doctor will have no problem with it and a great doctor will "encourage" it.

Good luck!

Last edited by birchlake; 03-09-2012 at 07:01 AM.
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Old 03-11-2012, 12:16 AM #3
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I'm not sure if this is how you spell it or not but last night I started nurotin... and I had a pretty good day today. The pain was much less, but kind of still there, more nagging than hurting as bad as it has been.
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Old 03-11-2012, 06:05 AM #4
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Neurontin is what a lot of us are on and it does help to some decree. You need to get to an experienced dr. to start blocks, PT, etc. Just remember "NO ICE" that is a big no no with RSD. I have to agree with everyone else. RSD has no age. There are lots of children with RSD.
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Old 03-31-2012, 06:50 PM #5
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Neurontin is what a lot of us are on and it does help to some decree. You need to get to an experienced dr. to start blocks, PT, etc. Just remember "NO ICE" that is a big no no with RSD. I have to agree with everyone else. RSD has no age. There are lots of children with RSD.
I saw a new doctor this past Thursday who seems to know a lot more about RSD. He wants to do a nerve test and go from there. Mom said as of right nw things are loking good that I most likely don't have RSD, but she wants to see how the nerve test goes. Thanks everyone fr the advice and help, having somewhere to put things into words makes a big difference. Mom has also sat with me and read some posts. She thinks it's great that there is a place where people with RSD can talk and said this would have made her experience better when she was first diagnsed because she could have found someone who understood what she was going thrugh.
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Old 04-02-2012, 08:48 AM #6
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Originally Posted by Blueangelgal View Post
I saw a new doctor this past Thursday who seems to know a lot more about RSD. He wants to do a nerve test and go from there. Mom said as of right nw things are loking good that I most likely don't have RSD, but she wants to see how the nerve test goes. Thanks everyone fr the advice and help, having somewhere to put things into words makes a big difference. Mom has also sat with me and read some posts. She thinks it's great that there is a place where people with RSD can talk and said this would have made her experience better when she was first diagnsed because she could have found someone who understood what she was going thrugh.
Hey Jessica! So happy to hear that you found a dr that knows about RSD, they are hard to find!! Good news that the neurontin is helping, hope it continues. I couldn't tolerate it, but I read on here that a lot of folks take it with successful results. I also hope the nerve test goes well for you. Please keep us posted!

All the best,
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Old 04-02-2012, 09:17 PM #7
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I'm aware of no evidence it runs in families and this has been investigated.

Of course there are familial similarities that could cause onset in specific circumstances but it's unlikely in any given circumstance.
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