Quote:
Originally Posted by crpsisnofun
Thanks for sharing Nanc! I appreciate your time and caring to respond. It seems that it complicates things that there is no commonality for everyone in symptoms or in treatment. I am happy to hear that you found what works for you. I can't wait to get to that point. I have had more bad days in the past two weeks than good. It almost is as if meds aren't helping at all now. It's nice to be able to hear from people like yourself that really do understand. BTW, I cannot imagine living with this for 20 years! You deserve some sorta of a metal of honor! I am not even at one year mark and I just can't see how I can do this much longer. Many thanks and lot's of well wishes to you!
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Happy to share! And you are so right about the lack of commonality. You would think that as long as it has been around, more drs would be knowledgeable...but they are not! It is nice to find a place where people really get it and understand. I am lucky that my husband is great, he understands and really sees how I have suffered. It is hard for others to understand, they can't see it so they doubt that it is there...very frustrating, especially at work!
I truly understand what you are talking about with having more bad days now than good. They really need to get a jump on your treatment so it will be more effective!! Everyday for me was bad, and some worse. Thankfully I found a good dr (he was only like the 14th) and he treated me properly. Meds really do not help any pain I have. My SCS's are really the only thing that have touched my pain.
It is getting close to 21 years - ugh! Can't believe it myself, but I am reminded of it daily
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Wishing you all the best,
Nanc
04-10-2012, 12:40 PM
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