seriously do not understand this disorder that has infected my body... i woke up at 6:45 or so when my boyfriend was leaving for work & felt okay. fell back asleep for a few hours, woke up & every part of my body is screaming at me... after slathering on lidocaine cream anywhere i can & taking some pills, i can finally sit here & type this... so confusing & frustrating as hell! especially when i had plans & once again, i can not be counted on. seriously sucks.




thanks for reading & letting me vent...

we all feel your frustration, wish we could say for sure that it will change. I have had this since...(well my name says it all)2009 I still have moments of what??? whats going on.? we research our pain and infliction and over and over it boggles the mind. from one moment to the next I could,t tell you how I will feel what I can say is we all get it. little explaination needed. its a tough infliction indeed and we are here to help each other to learn to cope with this beast. god speed and soft hugs. I will keep you in my prayers.

Very sorry you've had a rough day today. Hope tomorrow is a better one for you. RSD is an insane disorder. Someone asked what my symptoms were two days ago and I tried to describe it to them and they were horrified...probably more so because I was so calm when I was explaining it. And it is horrifying and awful...I hate thinking that there are others who go through this because I wouldn't wish it on my worst enemy. We're here for you anytime you need us.