Our daughter was recently diagnosed with early stage CRPS and we are trying to find out recommendations for specialists in the Portland, OR (metro) area. We live in Vancouver, WA.

Thanks,

It is very hard to find specialists for this disease. You may have to travel. I live in Indiana, and so far can't find one. You are fortunate that your daughter is in the Earl stages. She has a good chance at remission with the right care. A neurologist will be helpful and can help you with your search. In the meantime, keep the faith and do your research. There is a ton of info out there. It is awful to see your child in pain. I feel for you.

I was unable to find any in OR, but I did find one in WA - Waters Edge Pain Relief Institute 509-574-3805 in Yakima WA. I have no clue how far Vancouver is from Yakima, as I'm from NJ and completely unfamiliar with OR or WA, but maybe this will help?

I'm very sorry to hear what you and your daughter are going through. If you think she can travel then I would definitely consider traveling to go to one of the great hospital clinics/programs that are out there. I have heard good things about the Boston Children's Hospital and the Cleveland Clinic...though I don't have any personal experience with them. Hopefully others will chime in with more options and their own experiences. I would definitely consider researching this type of program and go where you think sounds the best. Children and those early on in RSD have the best chances for remission and you want to make sure you get this treated as aggressively as possible, as early as possible, for the best chances at that remission. I wish you and your daughter the best of luck.

Thank you for the information. We appreciate all the help we can get. Yakima is about a 4hr drive...not so bad!

Hey Mook,

I live in Seattle, WA and my pain doc here has just opened a sister clinic down in Portland. She splits her time between offices...but she has been a Godsend for me. She treats many patients with CRPS. I'm sure it is not quiet as goo as one of the BigWigs talked about so often here...but I have found her to be extrememly helpful. I'm not sure what the forum rules are here, and if I can post names/clinics...but if you want more info shoot me a PM.

-Heather

Hi Heather 👋🏼

Just became member & saw your post. Never been part of forum before, so hope doing this right . I’m very interested n getting the info on your pain specialist for my CRPS/RSD. Been in severe flare for 8 months now, in & out of hospital but it nice they stabilize my vitals, just send me home, so will only go now if becomes life threatening.

Don’t know how to to DM on here. But if you could help provide that… can’t tell you how grateful I’d be 🙏🏼

You might use our site search or check the sticky threads above the main posting section.
This thread is from back in 2012.

Appreciate that!

I also live in Vancouver, Wa. I have never been there because my insurance won't cover it (L&I), but I hear there is a doctor there who specializes in the study of CRPS. Hope this helps!