[AintSoBad]

I agree w/ Catra, but for dumping your current doctors. UNTIL and UNLESS you get better ones. I had a chiropractor who realized I had RSD. Then, got me to doctor Schwartzman in Philly. Find a University Hospital as close as you can and get to the 'Chief of Neurology".
Ask about their knowledge and treatment of RSD. DO NOT BE SHY! This is Your Life!

Some (many) neurologists, (the doctors who should be treating rsd, get into neuro, to keep their hands clean. That's OK, so long as they know what they're doing!
So ask lots of questions, state your symptoms and concerns, and expect to hear the right answers, DEFINITIVE ANSWERS!
AGain, don't be shy!
And, try a chiropractor in the meantime....

Pete

ASB

[Nanc]

Hi Richard! So sorry for what you are dealing with. It is terrible when we suffer so much and have to deal with doctors who are just flat-out stupid! (Sorry, but I have had several of them) Anyway, I agree with catra that you need to find a knowledgeable doctor first thing. That, I know, is a huge challenge in itself. From recent experience, I would not recommend UVA's pain clinic at all. They were great back in the early 90's when I went there, but not now. The dr I saw there a little more than a year ago was a joke.
Did you look into MCV/VCU? There seems to be some really good drs there. I do not see anyone there for RSD, but I do for migraines. Their Neurology dept is supposed to be the best. I have heard that there are RSD specialists there as well. I see someone else to manage my pain and he implanted both spinal cord stimulators in me last year. It took a long time to find this dr, but I love him!! He is at Stony Point Spine Center here in Richmond.
I cannot tolerate most meds, pt, tens, bath soaks, so the SCS works for me. Everyone is different so you really need to find someone who is experienced and open minded!!

I wish you luck!!
Nanc

[Fattieratties]

Hello everyone and again thank you for your informative responses.. Funny thing happened while I was doing some research on doctors in my area who specialize in RSD in my area. The doctor I see for pain management pops up at the top of the list...I must say I didn't see that one coming. I've set am appointment for the 17th so fingers crossed she will be able top get me started on a treatment or at the very least lead me in a direction to find someone who will be able to help. At least for now I have some hope that things might be looking up. I've got my fingers and toes crossed, well as best as I can cross them lol.again I want to say thank you to everyone for your kind and informative words.I'll keep you updated we to what's going thank you and keep smiling..

[Fattieratties]

My dr got me in today but the appointment was pretty much pointless. She put me on neurontin but dismissed everything including my new symptoms. She said this new medicine would take care of everything. I really hate it when I feel like everything I say or how I'm feeling is dismissed. I'm gonna give this new medicine a chance but its still frustrating.I've also looked for other specialist in my area but the closest one I can find is in Richmond virginia about 2 hours away.grrr.why must things things always be so difficult. Thank you for letting me vent and if anyone has any ideas please pass them on.

[betsykk]

Hi Richard,
I live about an hour north of you and have a 20 yr old daughter with RSD. You are right, there are not a lot of good doctors in our area. Dr Hamza at Stony Point in Richmond is ok; he would most likely want to try you on a pain pump to see how you do. We see Dr Chin in DC for 3 day ketamine infusions. It has given my daughter some good relief. There is a good practice in NC..I think it is the Raleigh area if you are interested in exploring ketamine. There is a great group on FB called The Ketamine Klub for CRPS/RSD. They have a document with all the doctors that patients have reported that use ketamine. It's a good list because all the doctors listed use other treatments and not just ketamine and there is some great info on insurance as well.

[reluctant@thetable]

Originally Posted by betsykk

Hi Richard,
I live about an hour north of you and have a 20 yr old daughter with RSD. You are right, there are not a lot of good doctors in our area. Dr Hamza at Stony Point in Richmond is ok; he would most likely want to try you on a pain pump to see how you do. We see Dr Chin in DC for 3 day ketamine infusions. It has given my daughter some good relief. There is a good practice in NC..I think it is the Raleigh area if you are interested in exploring ketamine. There is a great group on FB called The Ketamine Klub for CRPS/RSD. They have a document with all the doctors that patients have reported that use ketamine. It's a good list because all the doctors listed use other treatments and not just ketamine and there is some great info on insurance as well.

Hi Betsy. I have a question about the Ketamine Klub on facebook. Perhaps I am doing something wrong. A number of weeks ago I went to the facebook site and saw there are 2 Ketamine Klubs. One is a closed group with 200 plus members and the other, which seems to be a more recent group, does not appear to be closed. I requested to join both clubs because I am trying to get Ketamine treatments. I heard back from one group asking me for more information about myself which I provided. I haven't heard back since and haven't been accepted.

I also read that someone else on this forum was having difficulty getting accepted. Do you know anything about this?

Thanks.