Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 05-11-2012, 12:10 PM #5
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Nanc Nanc is offline
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Join Date: Jan 2011
Location: VA
Posts: 975
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Default Hello fellow Virginian...

Hi Richard! So sorry for what you are dealing with. It is terrible when we suffer so much and have to deal with doctors who are just flat-out stupid! (Sorry, but I have had several of them) Anyway, I agree with catra that you need to find a knowledgeable doctor first thing. That, I know, is a huge challenge in itself. From recent experience, I would not recommend UVA's pain clinic at all. They were great back in the early 90's when I went there, but not now. The dr I saw there a little more than a year ago was a joke.
Did you look into MCV/VCU? There seems to be some really good drs there. I do not see anyone there for RSD, but I do for migraines. Their Neurology dept is supposed to be the best. I have heard that there are RSD specialists there as well. I see someone else to manage my pain and he implanted both spinal cord stimulators in me last year. It took a long time to find this dr, but I love him!! He is at Stony Point Spine Center here in Richmond.
I cannot tolerate most meds, pt, tens, bath soaks, so the SCS works for me. Everyone is different so you really need to find someone who is experienced and open minded!!

I wish you luck!!
Nanc
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"Thanks for this!" says:
cindi1965 (05-11-2012)
 

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