[BlueGrassBaby29]

Hello,

I am posting for my mother to try and talk to people who have went through intervenous ketamine infusions. I would like to hear your results whether your treatments were successful or not. My mother is working with Dr. Getson in New Jersey for a 3 month tapered intervenous ketamine infusion. Before we commit to the $50,000 payment i am curious to see the success others have had.

My main questions would be
- What areas are effected wtih RSD?
- how long have you had it?
-how many treatments have you had and for what length of time?
-what relief, if any, did you get from the treatments
-how long did the relief last?

Background on my mother:
when she was 16 she was in a house fire and sustained 3rd degree burns on 45% of her body. She had RSD coming out of the burn unit, but her Dr.s were unaware of the condition at the time (1979) and she thought the pain was associated with the burns, and that she would have to put up with it her whole life.
in 2003 she fell and broke her foot, and was put in a cast. she ended up going to the emergency room shortly after to get the cast removed and found that she had severed nerves in her foot. The cast and severed nerves set the moderate pain of her RSD into full bloom.
Since 2003 the RSD has travelled throughout her body. It attacks from head, to foot. she is now 49 years old and her life consists of laying on the couch in constant pain. In the last three years it has attacked her head and heart, giving her several RSD induced "heart attacks". she cannot wear regular clothes, bathe by herself, walk to the restroom, swallow food, cry, or preform daily activities that many people take for granted without intense pain.
I know in my heart that my mother is not going to be around much longer if she doesnt get some form of help. $50,000 is a lot for my family but we are willing to do whatever it takes to help her. I would appreciate hearing your personal experiences with Ketamine.

Thank you

[Jomar]

You can use the search tool link in my siggy until members reply about the IV ketamine.
There are many posts here about all types of ketamine treatments.

[painman2009]

Hey blue grass. Im glad you took the initiative to come here and learn . My RSD started as a result of a slip and fall on black ice while at work.
my initial injury caused contusions, bruised bone and a blood clot with that was treated by taking a blood thinner, when that cleared the pain was still radiating from foot ankle and knee, and foot was ice cold and still discolored. I was on crutches, going to PT and seeing a vascular surgeon, neurologist, orthopedic surgeon, pain management and spine specialist.. with in 7 months I had it with being home so I convinced my Dr, to allow me back to work. First I was doing light duty, then I went back on route, slowly but surely I started to get worse, the pain got so bad that I found it almost impossible to do minor duties at work till one day I woke up and needed my wife to bring me into hospital, as walking 10 feet from my bed to bathroom was to painful.with in 3 days my Dr,s said it was to dangerous to go back to work so they PULLED me out of work, they put me on neurontin. and percicept, what an argument I gave re the perc. I lost as comp made me take them. saying if I refue this treatment I will no longer be covered. then shortly after my dr,s all suggested I research RSD. then they started the panel of tests. since my dx I've done steroid injections, ganglion injection, lumbar block, spinal tap, and epidurals. all major fail. in fact the second steroid injection made RSD worse. so the put me on amrix(muscle relaxer) vimovo.(super advil with nexium) lyrics. in place of neurontin with that made me dumb and forgetful and sleep and so on. also elavil for sensitivity(helps a little) now the lyrics does nothing for the pain. they keep me on it because initially it made me sleep at night. well goes what here I am at 3 am on the computer because it doesn't do that anymore. right now I am paying for my own aqua therapy, and IDK yet how that is going. and I am presently awaiting response from john hopkins to see If comp and they have agreed to a fee schedule.. if so then I will be going for pain psych. rehab . it is short duration PT occupational therapy, and try to get me off the drugs.though thats easy all they gotta say is don't take them and I will.. only so i cn drink the pain away(lol) not really.. and thats where I am now. the RSD has spread from right limb to both lower limbs.(groin, testies, surgical areas, belly, chest upper arms , lower back, and upper shoulders. it sucks but I wake up every day.. hope this helps a little

[SandyRI]

Do you have any insurance to cover some or all of the costs of the infusions?

I started the 10 day outpatient protocol with Getson in April 2010. Ketamine has changed my life. 2 months after I started my infusions I returned to my FT job.

WC has covered the cost of my infusions. It has been a battle. I recently won finally won an appeal which should cover me for a long time.

I also received approval (after many appeals) from United HC for the infusions. But they do not pay what most doctors charge.

Check out the Ketamine Klub on facebook. There is a lot of ggod info there. I highly recommend ketamine. But please look into your options for insurance coverage.

The best of luck to you Sandy

Originally Posted by BlueGrassBaby29

Hello,

I am posting for my mother to try and talk to people who have went through intervenous ketamine infusions. I would like to hear your results whether your treatments were successful or not. My mother is working with Dr. Getson in New Jersey for a 3 month tapered intervenous ketamine infusion. Before we commit to the $50,000 payment i am curious to see the success others have had.

My main questions would be
- What areas are effected wtih RSD?
- how long have you had it?
-how many treatments have you had and for what length of time?
-what relief, if any, did you get from the treatments
-how long did the relief last?

Background on my mother:
when she was 16 she was in a house fire and sustained 3rd degree burns on 45% of her body. She had RSD coming out of the burn unit, but her Dr.s were unaware of the condition at the time (1979) and she thought the pain was associated with the burns, and that she would have to put up with it her whole life.
in 2003 she fell and broke her foot, and was put in a cast. she ended up going to the emergency room shortly after to get the cast removed and found that she had severed nerves in her foot. The cast and severed nerves set the moderate pain of her RSD into full bloom.
Since 2003 the RSD has travelled throughout her body. It attacks from head, to foot. she is now 49 years old and her life consists of laying on the couch in constant pain. In the last three years it has attacked her head and heart, giving her several RSD induced "heart attacks". she cannot wear regular clothes, bathe by herself, walk to the restroom, swallow food, cry, or preform daily activities that many people take for granted without intense pain.
I know in my heart that my mother is not going to be around much longer if she doesnt get some form of help. $50,000 is a lot for my family but we are willing to do whatever it takes to help her. I would appreciate hearing your personal experiences with Ketamine.

Thank you

[alt1268]

bluegrass.

Sorry to hear how your mom is sufferering. Please check out the sights also check out ketamine Klub on facebook. please tell your mom we all give her gentle hugs and thanks for being such a great help to her and your family.

[pg2005]

A friend of mine has full body RSD and Dr. Getson did ketamine infusions for her. She was not pleased with her experience there and left to find another doctor. I'm not sure of the details, but I think she was treated poorly. Her family also paid out of pocket because insurance would not cover it. I have no personal experience with Dr. Getson.