Paula Abdule was on the View today. She talked about being in pain but did not mention RSD!!! So ******- what's wrong with her!!

DEBBIE

Im going to guess that she viewed this site or was told about it so figured more safe to not be detailed.. if this is true I think it would be nice for her to enter a thread in this forum. even if she doesn't wish to be a face to this beast she can still enter the community for herself and be apart of this group to maybe help us via experience. each person make a difference

I did not see the show-Was she promoting her beauty products?

She owned up to it on Dr Oz, and he went into some small detail.
And, how do we know, she's not here already?

Question everything!

Pete

Asb

Well, I'd like to add that we on PN forum here, have often discussed how having a "spokesperson celebrity" might help our cause and get more research done.

PN is very common, and more people have it now than MS and PD combined.

The Neuropathy Association is very weak, and let me give you an example of how disappointing:
The Today show was to have Neuropathy on it one day, and this spread over the web and we all watched. You know what it was?
Standing outside with Al Roker and the holding up of a T shirt to buy! Nothing else! no explanation, no time allotted to educate.

I searched Paula Abdul's charity work, and could not find any contributions listed to RSD or its research. She has over 10 other charities however, she participates in.

Very unlike Montel Williams, Michael J Fox or even Celine Dion, who are very active in speaking for their cause.
Celine is very active in Cystic Fibrosis research.
This is an example of real activism by a celeb:
http://www.celinedionweb.com/celine-...-fibrosis.html

It's a sad story.. As when ever our illness has a glimmer of a chance for some recognition, it doesn't get the true air time we deserve... I realize Paula did address her RSD on the Dr. Oz show, 20 minutes of pain chat and light show on nerve travel, then on to her anti aging products and natural remedies.. nothing mentioned on the View, except her history of ill fate with her cohosting x factor show.. I felt the View didn't want her to bring up her illness due to the diversion it would take on her interview, that was not what they were after.... It's like everyone is afraid to give us air time.. Why?? My take is because we do not have a positive outcome, no cure nor do we have the artillery in place to support our number of sufferers in comparison to other illness such as cancer.. There is Constant recognition, fund raising, awareness to support the number of those illness verses our number of RSDer's... Only detrimental to us as other non-sufferers, see it as starting on the ground floor to help us, even talk about us.. Like it would be too much work to help us...or even bring attention to us.. UGH!!!

Just my thoughts...

Hugs, Kathy

Ok trying to word this correctly is alluding me. What problemsPaula may or may not have no longer matters. She is obviously not going to be good for us(for her ??? maybe) we really can use some one like Michael J Fox and so on but unless another big start steps forward saying they have RSD we are up a creek. we can try writing a few celebs to stand up for us and help us with our fight and our cause, but I think as a group we should write our president all different letters maybe post something at our PM dr,s office to sign a petition or write a plea themselves. We need to step up together. not saying we don't do on our own. but together at one time??? we need to make the govt see it we need to make it real to them , send them our stories make there desk look like one big letter. and we should speak with our churches, get those pamphlets from RSDA and put them in our dr,s offices. call into radio stations, get the noted dr,s to get there studies out in the "real" world not just the world of other dr,s.(research seems to go to the groups that make the most noise(squeaky wheel and all)Maybe we should send letters out to paula (not angry) asking her to join our talk groups and find out ihow bad her RSD is maybe something good could come of it. I don't know the real answers for us but I believe this could shake some ground and maybe we can find our champion that way.. we need to be saved thats for sure. but for that we must be heard. I don't know how to start this but as a collective we must have some one that can help organize (US). I too am tired of being treated as if the issue is in my head or (you should try harder its mind over matter) i don't need a cheer leader I need a voice, research A pain friken. free day would be nice. I HATE people seeing the drugs I take and making judgements about me. I hate being looked at when I park in a handicap spot or when i see an IME and he says maybe if you lose weight. hello Im fat because I am not physically active. .. answers have got to be given but for that we need a voice to ask the right questions. we need research and better treatment options. but who aside from the RSD community really know this. Right !!! less then little. even dr,s are lost.(not right) if i had cancer(no cure for that either) I would be taken seriously. fibromyalgia is all over the news and commercials. hello RSD????are we the red headed step child you hide??? ..sorry about the rant. !!! but maybe this can all work