Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 06-20-2012, 08:49 PM #1
painman2009 painman2009 is offline
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painman2009 painman2009 is offline
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heres a kick.. you can have RSD even with out a temperature difference.. you don't need to have all symptoms.. not even the most common symptoms.. do not let the dr,s tell you differently. as there is a lot of documentation supporting what we are telling you...speak with your doctors and remember you might know more than them... that is why a lot of us see multiple dr,s so we can put this jigsaw puzzle together...
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Old 06-26-2012, 11:32 AM #2
KathrynL KathrynL is offline
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KathrynL KathrynL is offline
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Thanks for the responses. I feel like every doctor tells you something different and they all want to think they're the definitive expert. It makes my head spin. I'm so lucky to have this forum. I called my neurologist today to get her take on the results, so hopefully she'll help to clarify.

All my RSD symptoms, besides the pain and burning, all tend to vary depending on time of day and other variables, so it's so hard. Doctors don't always understand that.
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