Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 06-27-2012, 11:06 AM #1
Annie Poo Annie Poo is offline
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Default my experience with CRPS II and pelvic pain

I've had CRPS type II for seven years after a venipuncture nerve injury. Although it's not improving, it's not getting worse either. I'm on gapapentin and Cymbalta, and with meds, biofeedback, exercise, keeping warm, etc., it's generally under control and I can work and mostly function well (although I get fatigued way more easily -- never used to nap). I consider myself to be one of the lucky ones, and mentally am able to deal with it much better. The first three years were really rough and now the symptoms, weight gain, fatigue, etc. are just part of everyday life for me.

In my case, symptoms spread to upper quadrant of body (overnight) after 10 months, then to entire right side of body (overnight) after 2 years. Strongest symptoms are generally in limbs and head, and not as much on torso/back. However, during flareups I definitely have symptoms (burning mostly) in groin areas. Usually only exterior, but sometimes vaginal discomfort also. It's easy in my case to tell that it's CRPS-related because it's only on one side.

Good luck!
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Old 06-30-2012, 07:10 PM #2
Lovelife Lovelife is offline
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Default Pelvic rsd

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Originally Posted by belichkah View Post
New to this group and am wondering if anyone else has Pelvic RSD? I know it is most common in limbs, but I hear I'm not the only one with pelvic rsd. I would LOVE to know how other women cope with this and get some support from.

In 2006 I had an appendectomy that left me with extreme pelvic pain, it was first thought to be a bladder problem [I.C] but that was not the case, after laying in bed on extreme amounts of pain killers for two years, not able to move and absolutely no quality of life, I had the spinal cord stim put in. Although this has given me quality of life, I'm able to go to school and almost function like a normal person, my life still revolves around my pain and my "good" days vs. "bad" days. Id LOVE to meet someone else who also has pelvic rsd, what treatments have worked for you? Opinions on the controversial ketamine treatments? If theres another woman out there with pelvic rsd what have you been told about bearing children?
Can u please point me in direction of pelvic rsd doc.
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Old 07-15-2012, 11:12 AM #3
Lovelife Lovelife is offline
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Default Pelvic rsd

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Can u please point me in direction of pelvic rsd doc.
dear bel....
Have u found any help? I too am searching for help with pelvic crps
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Old 07-15-2012, 04:59 PM #4
SandyRI SandyRI is offline
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Default

Check out the ketamine Klub for CRPS/RSD on FB. There is a doctors list.

The best of luck to you.

sandy

Quote:
Originally Posted by Lovelife View Post
dear bel....
Have u found any help? I too am searching for help with pelvic crps
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