Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 08-02-2012, 11:50 AM #11
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Well I got good news and bad. Good news first. Ultrasound was normal and my daughter in law had a beatiful baby girl last night.

Bad news, saw pcp today says I got rsd in left foot as well as right and more then likely internal. He says this is the only thing that makes sense. PM on the 8th. Will discuss my options.
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Old 08-02-2012, 12:19 PM #12
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I have had both vomiting and full body temperature regulation issues since maybe a year or two post RSD??? I am on Estrogen, but alas, this has not solved "hot flashes". I still get chills as well, but not with as great of frequency as the earlier years. Meds can be a factor for both, so it's tough to know what is always going on.

My stomach pain and vomiting made me (additionally) miserable for years, because it was frequent, but not constant, and completely unpredictable. For me, changing how I eat, had resolved the stomach issues. Last week, for a variety of reasons, I started eating more bread and generally less well, than I had in the past year and a half. Sure enough, I started vomiting with almost no warning. Maybe my issues are not RSD related... Maybe my meds aggravate an underlying issue? Following the 4 F's diet closely isn't always fun, but my stomach, energy levels, swelling and pain levels are definitely better for it.

Congrats, btw! Grandma Alt?
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Old 08-02-2012, 12:57 PM #13
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I was doing real well on the 4f's diet and lost alot of weight but then when back to stress and depression eating and gained it all back. So Monday I am back on the diet. Thank you for the congratulations.
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Old 08-02-2012, 02:13 PM #14
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But did you notice a difference with your stomach with the 4 F's?
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Old 08-03-2012, 11:09 AM #15
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No, I still got sick just not as much.

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Originally Posted by LIT LOVE View Post
But did you notice a difference with your stomach with the 4 F's?
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Old 08-03-2012, 02:49 PM #16
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[QUOTE=alt1268;899305]According to dr. H are gi system slows down and this causes the stomach upsets. So my next step is a gastric emptying[/QUOTE

Please note I am sharing my experience with the following information- I offer only suggestions if anything. four years ago I started vomitting severely. I could not hold down food no matter what I ate. I lived on protein drinks. I lost much weight. I was seeing two expert physicans whom treated my rsd. I was told that rsd had spread internally.

In order to verify this...I was hosptialized in patinent and recieved barrium cat scan w contrast to make sure there was no anatomical issues w/ viable organs ect.

I followed up with a local top GI specialst whom was familiar with RSD since his anestiologist treated patients. the gi dr ordered ALL GI tests relatively quickly. Things such as upper endoscopy w biopsy to rule out celliac disease (wheat allergens), gastric emptying study which is needed to see about the stomach motility, and other imagings such as MRI's. Everything came back negative, except the fact that my constipation was still prevelant, and I was put on a medication to help regulate my bowels more. As per advice from GI dr: start eating. I learned to eat sweet potatoes, and bland items.

I changed my diet drastically- all healthy, it took a lot of time and years but it was worth it, and the diet change was small steps I took on my own.

When I was very sick, with the vomitting, I was getting full dose iv bags (like chemo patients) of zofran. or running to a local pcp dr to get intra muscular shots of zofran.

I was prescribed medications such as Marinol - works great synthetic thc, but expensive for nasuea and vommitting. as well as zofran pills and a medication called campabarzine or something like that.

My vomitting slowly disappered and than would re surface. I was given the option a few times to get botox injections via upper endoscopy to my stomach, and slow down the motility. I refused to under go an invassive procedure every 6 months. I also met a woman who had rsd whom proceeded w/ the botox injections and it failed her. she was living on special blended protien shakes from the dr, and reciving an iv infusion additional to treat the pain.

I was going under iv infusions at the same time for pain mangement, and with an additional infusion my vomitting subsided.

Every patient is different, and I rigourously changed my diet- including no cofee ect nothing acidy like tomatoe sauce.

Many patients wonder about the gi issues including vomitting. But the nerves really innervate the stomach and intestianal area, rsd affects the nervous system and nerves. For me although told it is internally I dont believe it to be accurate. I believe that the nerves where more affected so in the surrounding areas- nerves line the stomach ect, that was what was more affected. this is just my experience that i am sharing.
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Old 08-07-2012, 10:07 AM #17
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Ok. Good news is I do not have gallstones. Bad news RSD related along with left foot.
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