thanks everyone

I'm still battling with it.

true mates dont make you feel an idiot when you are sitting with a spoon between your teeth, sunglasses and earmuffs in a darkened room. lol

love ya all and THANKS for your support

froggsy xxxxxxxxxxxxxxxxxxxxxxxxx

Hang on Rosie. I'm still thinking about you. Isn't it funny [funny odd, not funny ho-ho-ho] that you can have such a big influence on so many people that you have never met, or never even spoke to? But it is true. Despite the absurd depths of despair of RSD, your tales and humor have helped others here last one more day, say "not yet", and decide not to do it. You do make such a difference. Hang on please.

Cheering you on!

Hope this is just a small hitch in your giddy up! You will be back to a quasi normal routine soon.

I agree with everyone that you are an inspiration, and true hero. You have had a huge impact on my life, and outlook on life.

Heya all!!

Thanks so much.....

I have had an achievement....................................... ........

THE EARMUFFS ARE OFF!!!! (as long as char isn't singing)... woo!!!! (just in time for me to go back to uni on mon/ tues, but hey!)

I am even out of bed and out of my bedroom! YaY!

mums been playing around with my useless wheelchair and sorted so I can be flatter... (also, because of me having to be semi flat alot of the time we have sofas in most rooms for chucking me on... so have seen a variety of ceilings now! - oh artist, that is such an AWESOME idea.. sorting it out!!

Though the pain hasn't really reduced I now seem to have regained the, I don;t know, erm, energy (??) to fight back and tell the stupid RSD to sod off and so I can start getting back on with my life again. So, no earmuffs and semi dressed, (clothes that are almost identical to PJs, but without being PJs!).....

Rain - I TOTALLY get what you mean about counting holes in ceiling tiles... I also used to try and distract myself at night by playing mental maths with the stripes on my curtains.. (how many? equal widths? same number on each curtain? same number of red? same number of white? if you multiply and then subtract them from each other what happens etc etc etc......... gosh I am sad...

Thankyou all so much. I am so glad that this forum is here, I don't know what I'd do without you guys, and you all mean so much to me

Love

Froggsy xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

Hi Frogga,

Good to hear you're feeling a bit better, and very good luck for the new term, let's hope that was the last bad flare ever. Here's the astronomy programme URL:
http://www.starrynight.com/ - (they changed the name!) - it's fun.

Take care,
all the best

I am so glad you are feeling more in controll they are right you know you are an inspiration to alot of us.. I do not post too often but I read alot and you are very suportive and very strong spirited..

Be well Frogga.


Sandra

How you holding up darlin? I have been through a rough patch here the last few days and was thinking of you. My hands were so bad I could not turn this machine on let alone, send a post.

I actually visualized a sameri ninja chopping off at the shoulder for me just to keep myself from going loopy the other night. I am back on my feet, and the sunshine is helping my spirit. (Long awaited through the winter here in NY)

I actually made it out for a short walk yesterday, but I am so tired of getting tired so quickly.

My new medication is working great for sleep (thank goodness), but I am a little moody during the day. I just cannot seem to not be tired, even though I think I am getting 8 to 10 hours a night. Within 4 hours of being up, I am laying down again.

Anyway, have been praying and thinking of you...

Gentle Huggy's

Rain

Hey Rain

How are you? I am really glad that your flare appears to be dying down - long may it last!!!! Have you thought of using stuff like voice recognition software so that you wouldn't have to type things out? It might make life easier!

I will get back to you properly later, things aren't brilliant here, BUT I will hopefully be able to reply properly tomorrow - just wanted to let you know I was thinking of you!!!

Froggsy xxxxxxxxxxxxxxxxxxxxxxxxxxxxx

I do use the voice recognition software when I cannot type. There are many a days... Thank goodness for it. But when the pain is so bad that I cannot even move a finger let alone the entire limb... I am Outta luck.

I try to type as much as I can even when there is normal pain, as I am so afraid of weakness, wasting, clubbing. My hands are so important to me mentally. My arms etc... I have to be able to give hugs!

Head hugs as we call them in my house, LOL are just not the same (this is a leaning thing you do with your heads\necks)

I am sorry things are not brillant with you but you managed to get word back YEA!

little steps for little moments (to us they are soooo huge!)

Huggy's

Rain

You are all in my thoughts and prayers!!!