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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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Hey all,
I just want to moan about RSD deprivation... Since the holidays I have not slept more than an hour a day. My blood pressure etc has meant that I have spent 95% of the time flat in bed (if I sit up for too long then I get the migrainey/dizzy/vomiting thing.. and not having my "normal" wheelchair (that tilts and reclines so I don't have to be straight upright) has made life even harder. Also really struggling with food again... at least chocolate is disolvable.. REALLY don't want to end up back on syringe feeds!! and I am SO frustrated.. all my friends are home from uni.... and at this rate I will have come home, stayed in bed for a month and then gone back to uni... I just can't believe I am paying this level price for just travelling home.. I have so much work to do but can't even look at it. Seriously, I have stared at a ceiling ..... generally in the dark with ear muffs on. for a month. going to ring pm dr tomorrow to talk about "options", cos this pain is going to send me insane at this rate!!! Love Froggsy xxxxxxxxxx
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