Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 07-15-2012, 10:15 AM #10
PhyllisJ PhyllisJ is offline
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Join Date: Jun 2011
Posts: 83
10 yr Member
PhyllisJ PhyllisJ is offline
Junior Member
 
Join Date: Jun 2011
Posts: 83
10 yr Member
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It's really hard when people, especially family and friends, don't take the time to understand our pain and struggles. I think my husband is finally realizing...after 5 1/2 years...that this isn't going to get better, and it's actually getting worse. I also suffer from a few other joyful challenges such as narcolepsy, and it seems at times my family doesn't care, but the I try to remember a conversation I overheard my husband having with his friend when my hand specialist was still trying to repair the damage. He said he felt so bad and just didn't know how to help me, and that he wanted to take my pain away, but couldn't...he felt helpless. He was almost in tears. If I can remember that the more I hurt and struggle the more helpless he feels, it helps me better handle his seeming frustration with me. I truly hope your CRPS calms down. Welcome to the group.
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