Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 07-07-2012, 09:54 AM #10
reluctant@thetable reluctant@thetable is offline
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Join Date: May 2012
Location: Wisconsin
Posts: 144
10 yr Member
reluctant@thetable reluctant@thetable is offline
Member
 
Join Date: May 2012
Location: Wisconsin
Posts: 144
10 yr Member
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Quote:
Originally Posted by painman2009 View Post
I had a hearing to try to get PT and john hopkins approved and this was just a cple of weak ago. NT THEY DID APPROVE IT now the carrier is requesting a hearing stating they have some evidence that will change my benefits.. the only thing I did was a little painting of my house. (It was a good day. pain levels around 7 but in lesser parts of my legs and feet. I suffered pain afterwards as Im sure you all understand y. Now my dr )neurologist) said to keep trying to do the maximum I can do and try to work through the pain. and this is what I do, my atty would prefer I do nothing all the time. If I do that then you might as well just shoot me in the back of the head now and put me out of my misery.. Im nervous now, and stressed. ever since I opened that letter from comp about the hearing my hearts in my throat and my pain levels in every part is escalating. its seems like a now win situation for me . top it off is I cannot sw my atty until monday so now Im stuck with this hovering over me like a lead cloud ready to crash down and burst my head open. My wife kept telling me to go inside, ( I should have listened then I wouldn't be stressing...
I can't imagine feeling like big brother is looking over you all the time. I think I would make a couple of points at the hearing-

RSD/CRPS is a disease that requires a "use it or lose it" mentality. My doctor said the most important thing is that I keep mobile. I have to push myself as part of keeping the disease from immobilizing me. One has to be careful to walk a fine line between doing too little or too much to avoid the spread of this disease. Does that mean I am "faking it" if I'm outside TRYING to do what I can to keep my life as normal as possible? No. It means that I haven't given into this terrible disease. Trying to paint my house falls under this category.

Additionally, just because you don't see my face grimacing with pain does not mean that I'm not in pain. Don't make assumptions.

Stress adds to the progression of the disease. The stress of worrying if your attempts at keeping mobile are going to be recorded by someone working for wc will only aid in the disease progressing in your body. Will wc take responsibility for that?

I would stress that the goal is to IMPROVE your health status. If wc recorded you painting your house and is trying to deny or decrease your benefits, I would point out that their actions are only working to DIMINISH your health status.

I would have a letter in hand from your medical doctor explaining that you need to do the activities that you can, when you can, for as long as you can to avoid further loss of function. With the letter, I would have your attorney point out that the letter came from a HIGHLY TRAINED, LICENSED medical specialist and not from a voyeur who recorded a brief moment of your attempt to keep from losing more of your mobility.

Can you tell by my caps that I am not happy with big brother?
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