[Denise R]

Hi,
My name is Denise.I am 49 and married to a wonderful man who understands me and supports me.We have 4 grown kids and 1 grandson.
In 2000 I was diagnosed with RSD after a fracture to my left foot.
It was diagnosed as RSD 4 months later when I could not walk on it and the pain was well you know.... off the charts.I have had 3 blocks with worse symptoms after than before.... for me the blocks seemed to make it move from the foot to EVERYWHERE. I did have a bad reaction during the 2nd block.3rd block no reaction but no pain relief either
I joined Braintalk and followed a lot of advice from other members and put the RSD in remission for several years with only a few flare ups when I did way too much.
However now it's back not the burning pain like in the beginning but I get real bad muscle cramps) all over even if I do nothing.My husband says I have been living in denial about it and I think he's probably right. For years I looked for all kinds of things that could be causing my problems.I guess I thought I couldn't still have RSD because the burning pain went away and was replaced with cramping and aching.In the last 5 years I have been to so many doctors I lost count.I have been diagnosed with RSD, Fibromyalgia (which I dismissed immediately big mistake on my part) , Arthritis, Mitral valve prolapse,tackycardia, osteoporosis,Stomach ulcer,
IBS ( I think it's because of the meds I take) Anxiety and probably a few others I can't think of now as my memory is not what it used to be.I have off and on pain in almost every part of my body.I refer to it as stupid pain because it is there today and gone tomorrow then back again.My leg will cramp up then I rub it and the cramp moves to another site a never ending circle of cramps. I thought I must be crazy cramps don't just come and go for no reason.Then the other day I read about how RSD Spread can turn into Fibromyalgia so I thought maybe the rummy dr was right and I did have fibro too.
So here I am to get the info from the people really in the know.The people who live with it instead of the drs who just scratch their heads and give me more meds.
For several years I thought I just needed to get over it.Pull myself up by the boot straps, you know think right, act right and you will be alright.Mind over matter well I guess I am here today to admit that I need help.
RSD is here to stay and I need coping skills and friends that understand RSD and Fibro.
I live in Las Vegas it's a fun town if you feel good but just another city if you don't.It's also a hard town to make friends in everyone is so busy making money or throwing it away.Too busy for a friendship I miss friendly people.I know their are some here but they must hide away in their homes like me.It's way too hot to go out it makes the RSD and Fibro worse.
I haven't been to the forum in several years and just found this forum since I could not find the Braintalk RSD forum anymore.
I look forward to talking, learning and make friends on this forum.
I hope you are having a good day .
Thanks for taking the time to read my post.
Denise

[finz]

Hi Denise,

Yup......it's sad to have more pill bottles than our elderly parents

Tough pain day, can't write much.....but wanted to say "welcome" (although sorry you have to be here) and the IBS could be related to your meds, but also goes with fibro and the bizarre auto immune responses that some of our bodies are doing.

[Denise R]

Originally Posted by finz

Hi Denise,

Yup......it's sad to have more pill bottles than our elderly parents

Tough pain day, can't write much.....but wanted to say "welcome" (although sorry you have to be here) and the IBS could be related to your meds, but also goes with fibro and the bizarre auto immune responses that some of our bodies are doing.

Thanks ,
Sorry you are having a bad day I hope tomorrow is better.
I did not know of the Fibro and IBS connection until recently.I wish my Dr would have told me instead of putting me thru every test they could think of. I am learning a lot about Fibro & the RSD & auto Immune connection things none of my Drs seem to know anything about.
Thanks for taking the time to write to me even though you feel bad today You are a very nice person.I am sorry you are in pain.I look foward to talking/typing to you .
Denise

[dennyfan]

Hi Denise, I am also new to the board. I am sorry you are lonely and having such a a hard time. Like you I have several medical conditions going on at once. I have RSD (CRPS Type II), Fibro, IBS, and Intestinal Ulcers. Along with battling the depression that comes with losing everything you know or thought you knew about your life and finding something knew. This isnt the only board I belong to. It was good that you reached you to find support & information. In a city as large as yours I would recommed you call the hospitals & look at finding a support goup. I live in a rural area and there isnt a support group available to me here. I was going to join one for fibro but the lady who ran it decided not to do it anymore. If you can get out of the house it would be a really good way for you to make friends who understand where you are at. If not try a Womens Center. Take a class of some kind. I did that when I couldnt find a support group. It really helped. I have come along way in the last year with my depression between working with my counselor & doing the things I discussed. I hope my ideas help you. Please take care of yourself.
hugs, Denny

[DianaA]

Denise,
I have had RSD/CRPS since 1989...full body. I too experience the muscle spasms and pain that move about my body. You are right. It makes no good sense.
But you are in good company here. We do all understand.
HBOT works for me and I am diving on a regular basis. This is a tough one, but we all manage somehow to get up and survive one day at a time.
I spend a fair amount of time in your wonderful city, if you every want to get together to share, I'd be happy to.
Take care. Welcome....Diana

[allentgamer]

Hi Denise!

Glad to see you here! I love to visit vegas too LOL. I dont get around there like I used to but they make it pretty easy in a power chair. Even helping you get one while your visiting.

Sorry to hear about your pain. The darn stuff is like the energizer bunny with me, it just keeps going and going. There might be a group for fibro there, check online to see if you can google one up.

[Denise R]

Originally Posted by dennyfan

Hi Denise, I am also new to the board. I am sorry you are lonely and having such a a hard time. Like you I have several medical conditions going on at once. I have RSD (CRPS Type II), Fibro, IBS, and Intestinal Ulcers. Along with battling the depression that comes with losing everything you know or thought you knew about your life and finding something knew. This isnt the only board I belong to. It was good that you reached you to find support & information. In a city as large as yours I would recommed you call the hospitals & look at finding a support goup. I live in a rural area and there isnt a support group available to me here. I was going to join one for fibro but the lady who ran it decided not to do it anymore. If you can get out of the house it would be a really good way for you to make friends who understand where you are at. If not try a Womens Center. Take a class of some kind. I did that when I couldnt find a support group. It really helped. I have come along way in the last year with my depression between working with my counselor & doing the things I discussed. I hope my ideas help you. Please take care of yourself.
hugs, Denny

Denny ,
Thanks for all the info I will follow your advice and try to get out more the weather is nice in Vegas for a while, this time of the year.I have been considering a Yoga class or maybe ti chi.I noticed their are a lot of different kinds of yoga teachings/classes.I wonder what kind would be the most gentle.I have also considered acupuncture but with the RSD have been afraid to try it.
I think you are right I do need a support group. I was always very social before all this now I get very anxious just thinking about going anywhere.Talking on the phone is even a little nerve wracking I know I must face this very soon or it will just get harder and harder.
I am sorry for all the problems you are having. It sounds like you have learned ways to deal with all this thanks for sharing.
May I ask did the RSD come first or did the fibro?What meds do you take to make it through the day or is that too personal?Also what other boards have you found helpful?
Thanks again for the reply & info
Have A Pain Free Day
Denise

[Denise R]

Originally Posted by allentgamer

Hi Denise!

Glad to see you here! I love to visit vegas too LOL. I dont get around there like I used to but they make it pretty easy in a power chair. Even helping you get one while your visiting.

Sorry to hear about your pain. The darn stuff is like the energizer bunny with me, it just keeps going and going. There might be a group for fibro there, check online to see if you can google one up.

Hi, Allen
Thanks for the welcome.Yeah the one armed bandits are killer on the arms and the pocket book LOL
I have not tried to find a fibro group to join yet but I will.... thanks for the suggestion. I am still in a little denial but this site and people like you are opening my eyes up.
Thanks Denise

[Denise R]

Originally Posted by DianaA

Denise,
I have had RSD/CRPS since 1989...full body. I too experience the muscle spasms and pain that move about my body. You are right. It makes no good sense.
But you are in good company here. We do all understand.
HBOT works for me and I am diving on a regular basis. This is a tough one, but we all manage somehow to get up and survive one day at a time.
I spend a fair amount of time in your wonderful city, if you every want to get together to share, I'd be happy to.
Take care. Welcome....Diana

Hi Diana,
I would love to meet you next time you are here call or email me.Do you like buffets I love them?Red Rock & Palms are the best for the price.What part of Vegas do you visit the Henderson side or Las Vegas ?What do you like to do when here?
Have A pain free day
Denise 953-0909
euginad@yahoo.com

[Denise R]

Originally Posted by Denise R

Hi Diana,
I would love to meet you next time you are here call or email me.Do you like buffets I love them?Red Rock & Palms are the best for the price.What part of Vegas do you visit the Henderson side or Las Vegas ?What do you like to do when here?
Have A pain free day
Denise 953-0909
euginad@yahoo.com

PS May I ask what you take for the spasms?