Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 03-26-2013, 08:49 PM #21
GutsyGirl GutsyGirl is offline
New Member
 
Join Date: Jan 2013
Posts: 4
10 yr Member
GutsyGirl GutsyGirl is offline
New Member
 
Join Date: Jan 2013
Posts: 4
10 yr Member
Default

I'm looking into this myself. Doctor thinks it might really help me. Crossing my fingers but hoping to try a few other things first.
GutsyGirl is offline   Reply With QuoteReply With Quote

advertisement
Old 03-27-2013, 01:13 AM #22
CRPStweet CRPStweet is offline
Member
 
Join Date: Jul 2012
Location: San Diego, CA
Posts: 167
10 yr Member
CRPStweet CRPStweet is offline
Member
 
Join Date: Jul 2012
Location: San Diego, CA
Posts: 167
10 yr Member
Default

I think if you got the right dose Gutsy girl, the sublingual ket would help. I only tried the sublingual ket once and it was not the right dose.
Keep us posted.
I now have the ket troches (lozenges) for flares.
I just re-read this thread and I wonder if all forms of ket are highly addictive.
CRPStweet is offline   Reply With QuoteReply With Quote
Old 04-21-2013, 11:12 PM #23
GutsyGirl GutsyGirl is offline
New Member
 
Join Date: Jan 2013
Posts: 4
10 yr Member
GutsyGirl GutsyGirl is offline
New Member
 
Join Date: Jan 2013
Posts: 4
10 yr Member
Default

I'm going to ask my pain management doctor tomorrow when I see her about intranasal ketamine spray. We'll keep our fingers crossed...
GutsyGirl is offline   Reply With QuoteReply With Quote
Old 08-10-2013, 09:01 PM #24
89danboy 89danboy is offline
Junior Member
 
Join Date: Jan 2012
Location: Eggharbor twp nj
Posts: 86
10 yr Member
89danboy 89danboy is offline
Junior Member
 
Join Date: Jan 2012
Location: Eggharbor twp nj
Posts: 86
10 yr Member
Default Ketamine,&anti inflamatory

ketamine has been clinically proven as an anti inflammatory,so I'm sorry mom don't tell these people suffering from rsd that it doesn't.also.dont know where your daughter had her coma infusions .but it wasn't in the United States.i couldn't bear listen to any more of your misguided medical propaganda crap to know.also ketamine isn't highly addictive so stop with that crap too.Too all the rsd forum I have full body rsd for 6 years.had the ketamine infusion two years ago "10 day infus"during the ten days I lost 22 lbs from all the inflammation in my body coming out.i felt soo much better for about 9 months.i just recently started ket nasal spray 50 mgs 3 xs a day.i believe that the spray is better than the infusions.for one the spray is like 200$ for a months supply.and I get better results .i was bed riddin for the last few months.now I'm golfing again and living a much better life.ive only been on the spray 6 weeks too.drs claim they want to help us but charge up to 5grand for an infusion.the cost of a 10 dayketamine patient is about 150$ to 200$ .why screw us like that.most people don't have the means for that.and desperately need it.4 years ago dr schwartzmann charged me 800$ for 10 days.that was well worth it.but today drs charge 1500 -2000 for one day.also prednisone really helps me feel better.my internal organs have so much inflammation and don't work.my rsd causes me to be sick on the couch for months at a time.this treatment is giving me my life back.good luck all
89danboy is offline   Reply With QuoteReply With Quote
Old 09-18-2013, 02:44 PM #25
MouseE.Ratz's Avatar
MouseE.Ratz MouseE.Ratz is offline
New Member
 
Join Date: Sep 2013
Posts: 2
10 yr Member
MouseE.Ratz MouseE.Ratz is offline
New Member
MouseE.Ratz's Avatar
 
Join Date: Sep 2013
Posts: 2
10 yr Member
Exclamation

Quote:
Originally Posted by Morgan Herritage View Post
Ketamine is FDA-approved in the United States for two-day use when the patient is awake. The comas aren't approved and most likely won't be for a while.
I wish they would approve the coma method for those of us who have been through the hoops with drs, and cannot find relief- or for those whom are allergic to other meds/anelgesics(like myself). In the beginning I would have told someone they were crazy if they told me to do the ketimine coma method, but now that I've had RSD two years(with almost full body spread), I would be willing to try it. The reason I read that the coma even works is becuase theres a theroy it restarts your brain, but also restarts the pain cycle, like hitting a reset button. The possible memory loss would be worth not having to use a wheelchair or canes ever again in my book.
MouseE.Ratz is offline   Reply With QuoteReply With Quote
Old 09-18-2013, 09:20 PM #26
Allanira Allanira is offline
Member
 
Join Date: Feb 2013
Location: NM
Posts: 318
10 yr Member
Allanira Allanira is offline
Member
 
Join Date: Feb 2013
Location: NM
Posts: 318
10 yr Member
Default

Ketamine is an anti inflamatory drug. It is used in large animals that are very valuable like race horses that are injured. It is a tranquilizer. They use it to sedate large animals for surgery. So saying it isn't an antiinflamatory drug is wrong. I worked at a vet clinic and was working on getting my vet tech license and working with large animals until I started hurting so bad I couldn't keep up with my school work because I would be laid out on the couch in pain. It does restart the human brain patterns. It was not originally intended for human use. It was made to sedate LARGE ANIMALS. Please look up ketamine and not make assumptions based on your own opinions. I wish your daughter didn't have to deal with this disease. It isn't fun. Individually we do a lot of research on the medication we are being prescribed. We still like to try and get opinions from others that have been on then. Please don't be angry with us. Be angry with this disease. We want to help each other get through this not tear each other apart. I know it hurts watching your child be in pain and not being able to help. It sucks royal boogers. Don't let it turn you bitter please. Keep positive for her sake. She needs you. Not just to help her but for mental and spiritual relief too. Think of how she feels when you are so angry. If you need to go hit a punching bag at the gym to get out some of your frustrations. Don't take it out on the people that are here to help.
Allanira is offline   Reply With QuoteReply With Quote
Old 09-20-2013, 03:19 AM #27
Sylmeister Sylmeister is offline
Junior Member
 
Join Date: Aug 2013
Location: Albuquerque
Posts: 60
10 yr Member
Sylmeister Sylmeister is offline
Junior Member
 
Join Date: Aug 2013
Location: Albuquerque
Posts: 60
10 yr Member
Default

My pain specialist in Tucson had 5 patients in a ketamine trials. Thy were 3 day comas instead of 5, approved research. I was pretty mad when he old me, I wished it was me but I am sure there were RSD patients in worse shape than me. I've Ben here in Albuquerque for about a year, and it was the last minor two I saw him that he was telling me about it... Spring of 2012 in Tucson.
Sylmeister is offline   Reply With QuoteReply With Quote
Old 11-30-2013, 08:11 PM #28
JDinVT JDinVT is offline
Newly Joined
 
Join Date: Nov 2013
Posts: 2
10 yr Member
JDinVT JDinVT is offline
Newly Joined
 
Join Date: Nov 2013
Posts: 2
10 yr Member
Default

Quote:
Originally Posted by alaska49 View Post
I have been on it 2 year now and its done amazingly well. its cheapers and eaier then doing infusions all the time. It is covered by fda and insurances do pay for it. I also take lossanges which arent as helpful as the spray
Which insurance did you have to be approved for the nasal administration? My wife is using sub-lingual, but she needs better pain relief. She has Medicare and United HealthCare AARP for drugs.

Thanks!
John (VT)
JDinVT is offline   Reply With QuoteReply With Quote
Old 12-01-2013, 07:09 AM #29
CRPStweet CRPStweet is offline
Member
 
Join Date: Jul 2012
Location: San Diego, CA
Posts: 167
10 yr Member
CRPStweet CRPStweet is offline
Member
 
Join Date: Jul 2012
Location: San Diego, CA
Posts: 167
10 yr Member
Default

Quote:
Originally Posted by JDinVT View Post
Which insurance did you have to be approved for the nasal administration? My wife is using sub-lingual, but she needs better pain relief. She has Medicare and United HealthCare AARP for drugs.

Thanks!
John (VT)
I had anthem blue cross
CRPStweet is offline   Reply With QuoteReply With Quote
Old 12-01-2013, 12:24 PM #30
Mickey4333 Mickey4333 is offline
Junior Member
 
Join Date: Sep 2013
Posts: 16
10 yr Member
Mickey4333 Mickey4333 is offline
Junior Member
 
Join Date: Sep 2013
Posts: 16
10 yr Member
Default Glyx-13

GLYX-13 (which is a cousin of Ketamine) is also a drug to help control depression, especially for those people who are resistant to treatment. The drug Ketamine comes in a Nasal Spray or intravenously but which also has many side effects. The drug GLYX-13 helps to control depression but with much fewer side effects. GLYX-13, however, only comes in Intravenous form.
Please, everyone or anyone please reply here if you personally have used either of these drugs or if you have any other or new information.
Mickey4333 is offline   Reply With QuoteReply With Quote
Reply

Tags
crps, intranasal, ketamine, rsd


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Ketamine for CRPS olecyn Thoracic Outlet Syndrome 0 02-09-2012 05:26 PM


All times are GMT -5. The time now is 01:55 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.