Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 08-04-2012, 03:45 PM #5
anne523 anne523 is offline
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Join Date: Jul 2012
Location: Michigan
Posts: 32
10 yr Member
anne523 anne523 is offline
Junior Member
 
Join Date: Jul 2012
Location: Michigan
Posts: 32
10 yr Member
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I know I need to give myself time...but it so frustrating and so many things I cannot do. I know my family (especially my son who is around most) is getting tired of things I need help with. My husband, who never even gets a cold, does not understand and has little tolerance when i simply cannot do something or go somewhere because I feel so miserable. Says it is all in my head..no reason I can't do as usual.
I find summer and warmer weather, meaning lighter/less clothing and slip on sandals so much easier. I type with my right hand and can usually use my first finger on the left to type.
I also have issues with guarding. I find it helpful (even if is all in my head) to wear one of my splints when going out of the house. It seems to me to be a bit of protection from the crowds. I also have issues, they say arthritis brought on from over use, in my right thumb. There are some days I can't drive or even hold my coffee cup. Drinking coffee thru a straw is just not right. But it was my way of adapting. I also have arm warmers with me at all times. The air conditioning and even light breezes are painful, so this way I don't need a jacket just my arm warmer.
I am scheduled to have an OT home evaluation and driving evaluation to see if any adaptions can be made to "make things easier." Has anyone ever had this done??
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