Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 08-07-2012, 05:10 PM #1
Orrwhat Orrwhat is offline
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Default Is twitching a sign of RSD

Hello everyone,
This forum has been such a help to me. It carries so my much information and I feel there is people who understand what I am going through. As most of you know once you are diagnosed with CRPS your whole life has changes... Well my has defiantly changed in the past six months...

In Feb 2012 I had shoulder surgery. A few months after the surgery I was diagnosed with CRPS in my left hand, arm, shoulder and now in it has moved to my neck area and chest bone. I am currently on the following medications (please note: I was on some of them previously due to chronic migraines):

Imipamine *
Topiramate *
Cybalta
Inderal *
Gabapentin
Norco
Naprosyn

I currently do PT at home three times a day. I have had two never blocks done on the same day with some success. The next step in my treatment is a six week treatment program at the Sacramento Pain Clinic. Since my diagnosis with RSD I have noticed my legs and arms twitching alot. After that I have the option to try the Spinal Cord Stimulator's trail prior to the SCS. I would love to hear peoples experience with the SCS with shoulder and and arm injuries (where is it placed, recover time, how does it work, etc.).

Some times the twitching is very mild other times the twitches are strong. I checked the side effects on the new medications I have been introduced (*) but they do not indicate this as a problem. Has anyone else had this problem and if so what has your experience been? Mine seem to be getting alot stronger which worries me. Sometimes when I am walking it almost causes me to fall. All comments are appreciated

Orrwhat

Last edited by Orrwhat; 08-07-2012 at 05:13 PM. Reason: Forgot to add astrics after previous meds
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Old 08-07-2012, 07:28 PM #2
LIT LOVE LIT LOVE is offline
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Yes, in my RSD effected arm, and mirroring in my good one... So, no pain in the "good" one, but nerve issues including twitching and shaking, temp regulation issues, hair growth oddness, and redness.

And none of my meds are likely to be the cause. I'm mostly just on opiates at this point.
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Old 08-07-2012, 10:31 PM #3
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Originally Posted by LIT LOVE View Post
Yes, in my RSD effected arm, and mirroring in my good one... So, no pain in the "good" one, but nerve issues including twitching and shaking, temp regulation issues, hair growth oddness, and redness.

And none of my meds are likely to be the cause. I'm mostly just on opiates at this point.
Thanks Lit Love

Have you or anyone notice the twitches increasing in strength? Mine are increasing in strength and I am worried that it will affect my walking ability.
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Old 08-08-2012, 08:50 PM #4
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I similarly was diagnosed with CPRS after surgery earlier this year. One of the first odd symptoms I noticed, and tried to ignore by blaming my medications, was twitching. I can't say they have increased in strength or pain but are annoying. But I also started on Gabapentin and now Lyrica within a short time after they started. My doctor indicated these meds help to calm the nerves that fire off these twitches. I'm not saying the doc has the answer, but it might be worth asking your doctor about. Good luck.
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Old 08-09-2012, 01:02 AM #5
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yep, i twitch in my digits, and my eyebrow, my eyes. Always random, and annoying.
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Old 08-09-2012, 10:44 AM #6
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Thank you for everyones replies.

I have twitching going on in my legs, arms and mid body. They are very constant. I have about 20 per minute. I feel like I look like a crack head.... Is there medication to control this behavior? I left a message for my doctor this morning becase it seems like my twitching is getting stronger and more often.
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Old 08-12-2012, 09:26 PM #7
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Quote:
Originally Posted by Orrwhat View Post
Hello everyone,
This forum has been such a help to me. It carries so my much information and I feel there is people who understand what I am going through. As most of you know once you are diagnosed with CRPS your whole life has changes... Well my has defiantly changed in the past six months...

In Feb 2012 I had shoulder surgery. A few months after the surgery I was diagnosed with CRPS in my left hand, arm, shoulder and now in it has moved to my neck area and chest bone. I am currently on the following medications (please note: I was on some of them previously due to chronic migraines):

Imipamine *
Topiramate *
Cybalta
Inderal *
Gabapentin
Norco
Naprosyn

I currently do PT at home three times a day. I have had two never blocks done on the same day with some success. The next step in my treatment is a six week treatment program at the Sacramento Pain Clinic. Since my diagnosis with RSD I have noticed my legs and arms twitching alot. After that I have the option to try the Spinal Cord Stimulator's trail prior to the SCS. I would love to hear peoples experience with the SCS with shoulder and and arm injuries (where is it placed, recover time, how does it work, etc.).

Some times the twitching is very mild other times the twitches are strong. I checked the side effects on the new medications I have been introduced (*) but they do not indicate this as a problem. Has anyone else had this problem and if so what has your experience been? Mine seem to be getting alot stronger which worries me. Sometimes when I am walking it almost causes me to fall. All comments are appreciated

Orrwhat
I find that I have some twitching as well but didn't put it together with RSD. Btw - have you discussed stellate ganglion blocks with your doctor? I had several series of these and they helped. They were worth it.
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Old 08-13-2012, 07:59 AM #8
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Default YeP

I have crps in both feet and they twitch at the end of the day. Especially when I try to sleep. Hate it when My feet twitch at the same time and slam imto each otherOn a bad night I will take a klonapin and it always stops it and helps me sleep. Good luck to you.
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