Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 08-18-2012, 07:25 PM #4
musicgirl757 musicgirl757 is offline
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musicgirl757 musicgirl757 is offline
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Join Date: Jul 2011
Posts: 49
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I would be careful. I don't think I would voluntarily tell other classmates about my RSD or why accommodations, etc. especially right away. She shouldn't feel obligated to share. She doesn't owe anyone an explanation to anyone and kids are so nasty these days. I would be afraid that if she shared that it hurts to be bumped etc. people might try to do it to her on purpose or make up untrue stories. I am a teacher and have seen things like this happen unfortunately. Things might work out better for her if only her teachers and administrators know and maybe a few close friends she can trust. She should just act natural. I think if she is in class, and leaves classes early to make easy transitions, there will be very little time for her to be questioned except in maybe the cafeteria or group work but hopefully, she would be with some friends. I know it is kind of a sticky situation so I would just advise you that if she is planning to tell all of her classmates, her words need to be chosen very very carefully. The teachers may get more questions about your daughter than she actually would. "How come Suzie gets gets to leave class early?" and then the teacher will deal with it hopefully in a positive non-revealing way. The school counselor might have some other ideas that may help answer your question if you explain to her dilemma. Good luck. Hopefully this helps.

Quote:
Originally Posted by Buckhorn24 View Post
My daughters starting high school in a week and we're not really sure what she should tell her new classmates. She'll be the only one in classes with a laptop, because she can't write, will get special conditions with her 504, and I'm sure the kids will be asking why or what's wrong. RSD/RND's a tough condition to explain to adults, how can you explain it to all those teenagers who'll ask and her new friends? Really don't want her to just be called the girl with the pain.

Anyone have any experience or suggestions on what to call it or an easy way to describe it to the other teenagers?
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