Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 09-01-2012, 07:29 PM #1
tkayewade tkayewade is offline
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tkayewade tkayewade is offline
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I have atrophy and boneloss.you can see through my bones, despite extra calcium and vitamin d vitamins. My bone crumbled when theyimo,anted my scs. I really worry as I age how many breaks I'll have to deal with. I'm a giant klutz!! I've broken the first rsd foot (rt) 6 times!!!
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Old 09-01-2012, 10:43 PM #2
painman2009 painman2009 is offline
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Quote:
Originally Posted by tkayewade View Post
I have atrophy and boneloss.you can see through my bones, despite extra calcium and vitamin d vitamins. My bone crumbled when theyimo,anted my scs. I really worry as I age how many breaks I'll have to deal with. I'm a giant klutz!! I've broken the first rsd foot (rt) 6 times!!!
wow.. have you mentioned this tendancy of klutzyness to your dr,s maybe you have an inner ear disturbance or something like that..6 times in the same foot . and it the RSD foot to boot. .As far as bone loss that is a lot. I think maybe its time I make sure I get another xray at the very least. I too am vitamin d deficiant as well as calcium. but all my others are good I wonder if it is RSD causing that. I have yet another question to ask my docs. good info to compare to thanks.
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Old 09-01-2012, 10:53 PM #3
ElsieGrant ElsieGrant is offline
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I have bone loss from RSD and it was one of the factors that led to my diagnosis...after nearly 6 years it was pretty evident to the doctor that finally decided to help me. What I am wondering is if anyone else with both RSD and bone loss experiences what I call 'lava bones' which really does feel like my bones are dipped in 'lava' or something similar to it. I relate this saying to the deep and intense bone pain on top of the usual hot and stabbing nerve pain which mostly feels skin deep. I take a certain kind of calcium that is supposed to absorb easier but the pain is still very intense and it's full body unlike my RSD. Should I be concerned about something else going on or is this kind of common after nearly a decade of living with RSD pain? I am not asking for any kind of concrete medical information just opinions or experiences that could possibly relate to this connection.
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