hmmm.. I have atrophy as well despite the work outs I do to try and retain muscle. it is hard to see the atrophied muscles because of all of my swelling.
Now I have seen alot of pictures of edema in some other RSDers. and Mine is not the worst. my feet, legs, arms, and hands all look like they should (just much larger) the discoloration is in my feet (sometimes my legs, arms and hands get really red) but my feet are (mood feet) now when Im really swollen my feet are white, red, powder blue, blue, purple..etc but when swelling goes down they are black, brown, purple/darkblue. my toe nails RE BRITTLE, and rippled, and split if not constantly manicured. im sure you all know how much fun that is. but back to my point it is possible to not swell like others. I havent been xrayed in a long time but before I had my solid dx my orthopedic surgeon said I had a loss in bone density. then he sent me for first bone scan then neuro sent me for tri-phase nuclear bone scan and that is when they saw pooling deformation in the bone (in fact the closer you looked from hip to foot the less of the appendage showed up(almost like I had no bones in foot and ankle and part of shin.. I guess now they find it pointless to keep checking ..

I have atrophy and boneloss.you can see through my bones, despite extra calcium and vitamin d vitamins. My bone crumbled when theyimo,anted my scs. I really worry as I age how many breaks I'll have to deal with. I'm a giant klutz!! I've broken the first rsd foot (rt) 6 times!!!

wow.. have you mentioned this tendancy of klutzyness to your dr,s maybe you have an inner ear disturbance or something like that..6 times in the same foot . and it the RSD foot to boot. .As far as bone loss that is a lot. I think maybe its time I make sure I get another xray at the very least. I too am vitamin d deficiant as well as calcium. but all my others are good I wonder if it is RSD causing that. I have yet another question to ask my docs. good info to compare to thanks.

Yeah, you have the routine down pat!
I am new to this group and found your note of despair and humor. I am 21 years with rsd and have to say this is the perfect new name. I used to call it Real Sh---y Disease and after i lived past the first 12-17 years began to call it a Real Special Dsease. It is not a fun thing and adding government issues turns it into a true nightmare. Fought 16 years with work comp and 7 with SSD.
It was a time of nothing but doctors, lawyers and one Indian Cheif. He helped me by the way. Cheif Red Fox was his name. Good medicine.

I offer you my sincere sympathy in battleing these issues. I found I had to do most of the homework and stand my ground with my proof.
Best to you and remember---you deserve to get attention and help.
They deliberately try and wear us down knowing how sick we are waiting for us to throw in the towel.
Get mad if ya have to...but have your proof on hand to fight with...
What do you have to lose? We have already lost life as we knew it...
Hang in there and reach deep for inner strength.
I am a praying person and I am on my knees still giving thanks for strength and wisdom. An ear and shoulder are here for ya!

I lived in the commonwealth of Pa during my battle. I can feel for ya.
Hope to hear back. Peace & LUV, Andrea RSD reom Mars with LUV.
Lending Unity for Victory.

I have bone loss from RSD and it was one of the factors that led to my diagnosis...after nearly 6 years it was pretty evident to the doctor that finally decided to help me. What I am wondering is if anyone else with both RSD and bone loss experiences what I call 'lava bones' which really does feel like my bones are dipped in 'lava' or something similar to it. I relate this saying to the deep and intense bone pain on top of the usual hot and stabbing nerve pain which mostly feels skin deep. I take a certain kind of calcium that is supposed to absorb easier but the pain is still very intense and it's full body unlike my RSD. Should I be concerned about something else going on or is this kind of common after nearly a decade of living with RSD pain? I am not asking for any kind of concrete medical information just opinions or experiences that could possibly relate to this connection.