Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 08-28-2012, 05:21 PM #1
ShelbyG ShelbyG is offline
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Join Date: Jan 2012
Location: Dubuque, Iowa
Posts: 7
10 yr Member
ShelbyG ShelbyG is offline
Junior Member
 
Join Date: Jan 2012
Location: Dubuque, Iowa
Posts: 7
10 yr Member
Default Need advice!!

Hi everyone! I am hoping to get some advice from others about my situation. Hoping that maybe there is someone else out there that can relate. I went ahead and got a SCS implanted in January. Long story short, my surgeon closed up shop and left town 10 days after surgery. I ended up having issues with the generator moving and found another doctor who relocated and anchored my generator correctly in March. Things were going along ok until I went to the courthouse to renew my license plates and one of the officers wasn't paying attention and zapped me with the security wand. That ended up frying out my SCS. So, in June, I had the whole thing removed and a new SCS implanted (quite painful). So, I had 3 pretty intense surgeries within 6 months. I have not really been able to figure out if the SCS is working for me or not as I've had so many complications. On top of that, my second surgeon never followed up on my third surgery, so I've now had to switch to a third surgeon (this time I went for a major university hospital) who I will be seeing on Thursday. Because of no doctor followup, I've been without any of my medication for approximately 6 weeks. Luckily, I had some backup pain meds left but because I hardly had any left, I've had to seriously reduce the pain meds I normally take which has resulted in severe migraines from the pain and stress, requiring ER visits to relieve. I am still unable to sit completely on my behind due to pain, when I lean back against things, it feels like I am leaning against two metal bars and I am in more pain now than I ever was. On top of that, for the past five years, I have had a major flare from my CRPS every November. I cannot even imagine being in more pain than I am now. At this point, I am almost immune to Percocet and Vicodan. I get extremely ill from Oxycontin and Morphine makes me sleep for 18 hours a day. I've been trying to do some research on my own and I am wondering if a pain pump would be my next option. Has anyone out there gotten a pain pump and had good results? Am I the only one out there that has had such a nightmare with SCS? I have accepted the fact that I will probably never have the life I once had, but at this point, I have no life. I need to find some kind of relief somehow (and I need to find a good doctor). Any help anyone can offer would be greatly appreciated!!
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