Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 09-03-2012, 12:12 AM #1
KyMarie KyMarie is offline
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Location: Moorhead, MN
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KyMarie KyMarie is offline
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Join Date: Nov 2010
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Exclamation Creams

I'm sorry if this is a duplicate thread, my pain levels are quite high today and I really don't feel like scrolling through and trying to find the thread where this belongs to. My apologies for this.

I was wondering if anyone could help me with a HUGE question regarding the ketamine and non-ketamine creams. My doctor has prescribed a non-ketamine cream for me but Medicare won't cover it and my state supplement won't either. He also goes through a special place in which would mail me the medication so I am unable to figure out the cost of these creams. I'm looking to see if anyone would know about how much these creams cost out of pocket and be willing to share. I can't seem to find information online to give me a cost. My income is limited by my Social Security but I've read nothing but good things about these creams and would love to be able to try them. If anyone could help me out, that would be wonderful. My disease is on the move and I'm spending more and more time in flares after my sympathetic blocks wear off (I get these done monthly) so if a cream can help me, I'm willing to do whatever I can to afford this.

Thank you!!! Wishing you all a low pain day and painless hugs!!!
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Old 09-04-2012, 08:11 PM #2
Sandy Shores Sandy Shores is offline
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Sandy Shores Sandy Shores is offline
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My doctor prescribes me a Ketamine compounded cream that my insurance won't cover. But I pay for it anyways because it does help. A month's supply with application 4 times a day is about $170. The pharmacy is in Alabama called Total Pain Solutions (TPS). They ship it in a day or two from ordering. For me, it's woth it and I can usually make it stretch longer than a month but still get some benefit.

Good luck!
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Old 09-13-2012, 08:18 PM #3
Sandy Shores Sandy Shores is offline
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Quote:
Originally Posted by Sandy Shores View Post
My doctor prescribes me a Ketamine compounded cream that my insurance won't cover. But I pay for it anyways because it does help. A month's supply with application 4 times a day is about $170. The pharmacy is in Alabama called Total Pain Solutions (TPS). They ship it in a day or two from ordering. For me, it's woth it and I can usually make it stretch longer than a month but still get some benefit.

Good luck!
Here is their phone #and and website: 8776084995 www.totalpainrx.com
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