Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 09-13-2012, 04:23 AM #11
LIT LOVE LIT LOVE is offline
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Quote:
Originally Posted by Kevscar View Post
Yeah I know the Police Medical Appeals Board refused early release of my Police Pension due to Permant Disability saying I had not followed NICE Guidelines and had the standard treatments.
No guidelines for the treatment of RSD/CRPS have ever been published in the UK and I have been willing to go further than any other UK Patient to be cured, agreed to have 5 day ketamine coma, one hospital refused to amputate while I'm awake, a second is now condsidering it There are no standard treatments every one is an experiment
The only time amputation should be considered with RSD is if a life threatening condition such as gangrene has set in as a result of elephantiasis.

This is a good description of the issues involved.
http://www.rsdrx.com/rsdpuz4.0/puz_116.htm
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Old 09-13-2012, 09:14 PM #12
painman2009 painman2009 is offline
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painman2009 painman2009 is offline
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Quote:
Originally Posted by Kevscar View Post
Yeah I know the Police Medical Appeals Board refused early release of my Police Pension due to Permant Disability saying I had not followed NICE Guidelines and had the standard treatments.
No guidelines for the treatment of RSD/CRPS have ever been published in the UK and I have been willing to go further than any other UK Patient to be cured, agreed to have 5 day ketamine coma, one hospital refused to amputate while I'm awake, a second is now condsidering it There are no standard treatments every one is an experiment
gotta love the pencil pushers and the bottom dollar people right..
listen kevscar. do only what you are comfortable with because you have to live with the end result. and remember that a lack of a standard treatment plan is not a plan in itself. I would question their decision and challenge their information.. be well
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Old 09-13-2012, 11:11 PM #13
Kevscar
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I have applied for a Judicial review of their decision. Should know next week if I;ve got it.
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