Quote:
Originally Posted by lolo217
hello jimking ! ty for responding, i appreciate it alot. i was diagnosed about a month now, i still have the broken wrist too, guarding it like crazy, as there is no cast, bones didnt heal together, so surgery cant come soon enough. i will show him your letter, maybe he will get it, it hurts my heart that he sits on his pc and does not even look it up, hopefully he'll come around? i dont know what or whered i be without him. again ty and say a warm hello to the mrs from me, you're a wonderful husband jimking, where is her rsd, how did it happen? id pm you but havent figured it all yet? ty again very much, kind words go a long way  |
Hi lolo.... I have dealt with this beast since 2009 and it keeps getting worse for me.. my wife and kids have seen its effects on me in a sudden flare. but i try like crazy to hide my true terror and pain. All that because eah day brings on new reactions despite the actual understanding of the beast they do not understand that this beast is one unrelenting , and two unpredictable.
one day i cld be at a pain level of about 7 and try to do many things at once so much so I accomplish a great deal in a short amount of time then other days i am at 9 .. a little slow and cautious as one turn can push you over the edge. then other days im at a ten and I would rather keep my feet up and lay down. but even further than that.. as many here will understand this when i say some times it is 10 to second or third or more power as each affected area is another entity and a cause for that much more suffering. doctors .even the best ones do not yet grasp this.. how can someone who cannot feel this understand it. Its so much to handle , just think about yourself months ago.. before you knew RSD/CRPS existed. if some one said I live in pain but it is invisible how would you react.,, So hard for me.. but recently I tried it out.. and I was no better than that,(sorry to say) we need to educate the world. and our loved ones best we can and then stand back and PRAY that they understand a little.. JIMKING.. wonderful and rare to stay and read these stories and learn and apply it to his relationship.. truly an inspiration to see this dedication he has put forth . as a couple people here have seen but on whole we as the sufferers are also burdened with the job of educating the masses. is this our lot in life as written by higher powers.. I dont know but it is ours.. so coming here is the best (first) step. welcome to this site and to our family ask your spouse to join you on this site for just one night and see what changes in him... I look forward to seeing his responses.. until them be well and remember you are now part of a larger family...
09-12-2012, 01:43 PM
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