Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 12-12-2012, 01:06 AM #11
CRPSsongbird CRPSsongbird is offline
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Quote:
Originally Posted by Freshh20 View Post
Yes I am seeing a pain management doctor but not as often as I should due to bills that we can't afford. They have me on tylenol and ultram or vicodin for pain, flexeril for my muscles and voltaron for swelling. *(I know those might now be spelled correct). What really just made everything worse is that the mri showed bruised bone as well, so they want to cast me or i have to be on crutches at all times. I go to college half day and my high school he other half. I don't know how I will manage that.
Keep as strong as you can! Do your best to excel in school. From what I've read so far a LOT of people can have long periods of remission! I'm only almost 2 months into my "condition", and have no figured out the med treatment plan yet so I empathize with your pain! I've been to the E.R. 2x in the last month because the pain was out of control but my doctor/s couldn't see me till the following week. If you have to use crutches makes sure you are taught the proper way to use them! As well as have them be the correct height and padded!!! very important details. Id you don't have all of that right you could injure yourself after "long-term" use, and SOMETIMES injuries can make the CRPS spread!So be careful, but also know it doesn't ALWAYS spread, everyone is different and that's part if what makes this condition so hard to pin down I think. I hope you find some relief soon! and PLEASE try as hard as you can in school. I didn't, and I was well. Now I'm paying for it in spades. Working overtime for time missed from doc appts and procedures, because I can't afford the time off....i

Hope you feel "better" soon
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Old 12-13-2012, 02:49 PM #12
Buckhorn24 Buckhorn24 is offline
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Is Dr. Sherry's program strictly PT? My daughter spent two weeks in the Pittsburgh hospital going through that, but it didn't help at all. Is Dr. Sherry's program the same as Pittsburgh's?



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Originally Posted by denisem View Post
My 16 year old daughter has been treated for RSD at Children's Hospital of Philadelphia. Her doctor is David Sherry. His is a no meds program that focuses on PT, OT, psychological therapy, etc. He has a phenomenal success rate with his patients - @ 90%, I believe! Prior to treatment my daughter suffered from extreme pain (mainly her back, shoulders, and neck) sometimes soo bad that she had bouts of global transient amnesia, sensitivity to touch, headaches so bad she was unable to speak. She was unable to attend school and participate in any physical activity. As of today, thanks to Dr. Sherry's program, her pain is minimal if any, she's returned to sports (back to playing basketball & ran a 5K early this month)! Never give up hope! If you're unable to go to Philadelphia, I'm certain that someone in his office will offer contact information if there's another physician following his protocol closer to you.
You can speak to someone in Dr. Sherry's office by calling 215-590-7234.
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