Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 10-26-2012, 09:19 PM #11
painman2009 painman2009 is offline
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Default THanx all

OK what do you do if your stuck with this dr.. Ive been looking and all my dr,s , save the anesthesiologist, keep giving me referrals and I keep looking to all the local hospitals unfortunately im on comp and 12/10 marked the beginning of the end for most of the PM,s accepting it. Im still looking. why would you become a PM dr, knowing that you are dealing mainly with chronic pain patients..
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ginnie (10-27-2012)
Old 10-27-2012, 01:43 PM #12
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I'd look at a doc that is not a traditional pm doc. Preferably someone with ESD experience. There is a whole host of issues that come with seeing a pm that mean reduced care IMO.

I have also learned to concentrate on the most urgent matters at every appointment. I pick my battles. Is it urgent to change dosages or type of meds? This can add 10 minutes or so to an appointment.

What other options have you been offered or discussed for a treatment plan? What do you want? Ketamine infusions may help you. Blocks may help you. If you have an extra couple thousand to spend, HBOT might be a good choice, etc. (Doubtful WC will pay for it.)
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Old 10-28-2012, 10:42 PM #13
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Originally Posted by LIT LOVE View Post
I'd look at a doc that is not a traditional pm doc. Preferably someone with ESD experience. There is a whole host of issues that come with seeing a pm that mean reduced care IMO.

I have also learned to concentrate on the most urgent matters at every appointment. I pick my battles. Is it urgent to change dosages or type of meds? This can add 10 minutes or so to an appointment.

What other options have you been offered or discussed for a treatment plan? What do you want? Ketamine infusions may help you. Blocks may help you. If you have an extra couple thousand to spend, HBOT might be a good choice, etc. (Doubtful WC will pay for it.)
I have naut to spend. and I have dscussed hbot, he also said pain pump(surgery I wont agree) acs (again surgery, as well as a batery up my cooly, I wont agree) he also did a quck mention of amputation.. obviously I will not agree to lose a limb. he did the lumbar blocks.. (a lot) no help at all, I've also had sterid injections, lydicain, cortizonwe injections.. all no help some made it worse.
I presently have a tens unit.. I use for strict back injury as it does noting for the RSD. the PM wont discuss the creams for topical use, I tried aqua therapy till I could no longer afford it.( i think it was helping just keep cardio good)
also PT plus all these wonderfully awful drugs..
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Old 10-29-2012, 08:04 AM #14
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Default Hi painman

Why no dicussion for creams from your PCP? It is not like an opiate. If your doc. won't talk to you about this, perhaps it is time for a new doc. You should be allowed to find out about this stuff. I do use one, and it does help. It realieves the burning on the bottom of my foot, and the pins and needles for hours. Not 100% but better. Two docs. recommended this compound. It should be made available to you. ginnie
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Old 10-29-2012, 10:21 PM #15
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I definitely recommend going in with a list and whip it out when you sit down. Regardless of the type of doc, most seem to be in a rush anymore. There are many stressors put on them (and every other healthcare worker) even though we like to believe they just dont care about us. I'm sure some dont care, but doubt it's the majority. Having the list has helped me absolutely make sure all of my concerns were answered. It also shows the doc youre serious about wanting their time/attention.
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ginnie (10-30-2012)
Old 11-06-2012, 11:14 PM #16
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Originally Posted by ginnie View Post
Why no dicussion for creams from your PCP? It is not like an opiate. If your doc. won't talk to you about this, perhaps it is time for a new doc. You should be allowed to find out about this stuff. I do use one, and it does help. It realieves the burning on the bottom of my foot, and the pins and needles for hours. Not 100% but better. Two docs. recommended this compound. It should be made available to you. ginnie
I only have comp now.. no medical coverage outside of RSD. and my PCP doesnt accept comp. she dropped it like alot of other dr,s (they should not be allowed to drop comp...from my stand point any way)
As far as the list.. I usually go in with my journal. but he doesnt want to see it or discuss it... and I'm still looking for a comp PM dr that goes to the hospital I trust.
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Old 11-07-2012, 09:11 AM #17
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Default Hi painman

Your situation is not fair. So without comp...this doc is saying "NO"?
I wish I knew a solution. Maybe start writing letters, to the docs. in your area, asking for their help. Heck I have written to a congressman, to get some issues resolved. Keep fighting the good fight. Not to prescribe this med. for you just doesn't seem right to me. Have you asked a physiatrist? Mine does accept medicare/medicaid, which most doctors won't do anymore. take care, and I wish you less pain. ginnie
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