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New Member
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Join Date: Aug 2011
Location: Midwest
Posts: 5
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New Member
Join Date: Aug 2011
Location: Midwest
Posts: 5
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Vrae, you made my day! Thank you!
You will never understand how you blessed my life by sharing yours! CRPS/RSD is crippling in and of itself, much less what it can do to your brain/mind. You are literally describing ME on a daily basis! I know sharing these difficulties is just as painful as the disability of CRPS/RSD itself, but I must thank you for being so very honest. I used to be as sharp as a tack, in fact, I was an office manager and lead Medical Transcriptionist at a local hospital. Now, I can't remember how to tie my shoes. I'm always getting lost (even in my own town) such that I now use a GPS for navigating. Names, numbers, directions, simple words, phrases, & forgetting what you're in the "middle of" are so exasperating that you just want to cry. I tried to sign a check at a grocery store and forgot how to spell my own name (good thing it's printed at the top of the check) Nonetheless, even writing it seemed "foreign". I should invest in sticky notes as I use them constantly, only to forget where I placed them. Nothing seems to actually sink in anymore. Found a spoon w/peanut butter in my purse last week - talk about feeling like an imbecile! I've also become number dyslexic - who'd a thunk? I'm extremely grateful for your post as I no longer feel so very alone! I stay home most of the time as these symptoms, along with all the pain of the CRPS/RSD (started in my right wrist, currently it's spread to both arms incl. shoulders, and both legs and feet). I find it simply easier to not deal with the "world". The more pressure I place on myself to finish ANY task or speak the correct words, the less I can actually think, much less recall. God bless you Vrae. I'm so very happy that your husband is a support. Most of my family, incl. my husband, have turned a blind eye to me as a CRPS/RSD sufferer. They think I'm doing it for "attention" - talk about dysfunctional family!!! So, it's me, myself, & I with the Lord beside me to make it through another day. God has blessed me with MANY amazing friends who are happy to help out and actually DO understand who I am and why I do what I do. Are we having fun yet??? Please excuse my spelling as I cannot find a Spell Checker on here anywhere!
On a side note, Katiek seems to be in the same boat we are and I also want to thank her for sharing. There's some type of kinship among those who suffer with CRPS/RSD not only in the physical realm, but, as I can now see, the mental also!
God Bless All who read this - May Jesus remain at your side and may the Holy Spirit heal you and make less painful your disease!
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06-15-2013, 10:14 AM
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