Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 11-29-2012, 08:13 AM #4
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jpcrps jpcrps is offline
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Join Date: Nov 2012
Location: Hawaii
Posts: 39
10 yr Member
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Have you contacted Dr. S and/or his staff to complain about the treatment she received? From the reading i have done, it is not unusual for a flare up to come on after a remission and that a series of nerve blocks, or as Dr. S suggested, a repeat of the ketamine treatment could put her back in remission.

If it were me, I'd start with Dr. S's department, explain the anxiety your fiance is experiencing and see if she can talk to someone to get her the care she needs. it sounds like she is having a really hard time with this ~ fear, anxiety etc!

Wishing you all the best and hoping that you can reach a caring soul at the hospital who can ease her fears and pave the way for a better coordinated treatment schedule for her.

Love,
Jenny
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