Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 12-07-2012, 11:00 PM #1
alaska49 alaska49 is offline
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alaska49 alaska49 is offline
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I havent lost my voice before but I do know of a girl in WA that lost her voice too for 6 months and she had the burning, I forget what they did but I think they massaged they voice box area and also gave her ketamine lossanges. I did loose the ability to swallow for 5 months, I had an ultrasound too my ganglion nerve and the vibrations shorted it out so I needed a feeding tube for the time and also could hold up my head. It took 3 months of a speech therepist coming too my bed every day to help retrain my swallowing.

You might want to find a speech therepist that knows something about RSD and see what they would reccomend. The speech therepist that helped me really understood infact she had RSD too from getter her tonsels out.

Niki
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Old 12-09-2012, 11:06 AM #2
katiek katiek is offline
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Hi
I have it on the right side of my face, it effects my eylids, inside my nose and cheek. I also have it in my womb due to birth complications when having my son. I took a while to convince the drs of that though. In the past I have had burning and stabbing pains in my kidney areas. So far I havent had any luck with treatment but to be honest it is not to bad compared to the other effected areas. good luck
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Old 12-09-2012, 11:30 AM #3
NeverPainFree NeverPainFree is offline
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I have RSD that started in my left foot after bladder surgery. I have terrible reactions to any meds they try to give me. Sometimes my mouth and tongue burn do bad a cant stand it. Does anyone else have these symptoms in your mouth.
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