Sorry to bring this up, but I have been having right upper quadrant pain for 8 weeks. So dr doubled nexium, performed an endoscopy and colonoscopy. Since then. Pain is worse, lots of gas also. Ended upin er last week and started on Zantac along with nexium. Ultrasound and hidda scan show gallbladder normal. So now dr is thinking ibs and started me on bentyl. Between us I stopped taking my neurontin I'm hopes I would loose weight and I've been doing really well with my foot.
With all this being said, last night I took my 1st dose of bentyl and also took 1200 neurontin, which helped. Haven't took any neurontin today and now pain coming back.
Do u guys think this is rsd?

Stay on the doctor prescribed gabapentin and see how things shake out in the near future.

I'd love to be off gabapentin too but I tried that once under doctor supervision and it wasn't very long until I found out that even though gabapentin has side effects, life is MUCH better on gabapentin than off of it. And it can help prevent spread in my opinion by keeping the nervous system in check.

Are you taking at least 500 mg of vitamin C daily? That has been shown to help prevent spread as well. I personally think everyone with CRPS should be taking vitamin C. 500 mg is far from a dangerous dosage, it's inexpensive and if your body doesn't need it, it is excreted very quickly; it doesn't stay in your body long.

Good luck to you! (and all of us.....)

I appreciate the feedback. I am taking vitamin C. Only 1 tablet. Not sure at this moment what mg's. I hate this. But am so thankful for everyone here.

I'm with ya on the life is much better with it, otherwise I would never stop crying with constant electric shock and other CRPS pains. HOWEVER, I will ask the doc in Jan. if we can at least try something else for a minute and see what happens.

Hi Alt, it's good to hear from you! Don't be sorry for bringing this up. What's funny was that I had to re-read my original post and look at the date and I am saying to myself, wow, a year later and I am still dealing with these issues. As recently as getting sick like this (original post) while in San Francisco a few weeks ago. I still don't know if it's gabapentin, or crps attacking my insides. And I'm not sure hon if yours is rsd or not. This disease is soooooooooooo frustrating in that way.

I wish I had something more definitive and knowledgeable to offer. I sure hope your feeling better soon! Please let me know what happens, keep me/us posted.

Hi Alt,
Sure wish I had a clue. I've had some of these symptoms too & thought it was due to extra Magnesium Dr. "prescribed". I never could tolerate neurontin anyway. Like most everyone here I too take at least 500 mg. vit. C daily.
So frustrating, wish I knew.

Hi Alt! It is so nice to see you, but sorry for the reason! I really do not have much to offer. It is so hard to say if it is RSD or IBS. I know the doctors default to IBS when they cannot figure it out....been there! I would say if the nneurontin is helping your pain, then keep taking it. That is unless the side effects are too bad to deal with. I cannot take it or anything else like it to help my pain and I really wish I could as I need some relief.

I cannot take Vit C either. I was recently diagnosed with interstitial cystitis (IC) and supplements irritate my bladder, specifically vit C. From what I have read, IBS is common with IC. My PM dr thought it was RSD in my bladder, but it isn't. I also read that IC is common with RSD patients...all I know is that it is painful and another incurable condition in which I can't take the meds for it either

Sorry to go on about myself I hope you can get some answers and relief soon!

Nanc