Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 12-21-2013, 07:58 AM #1
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Hi Vrae and everyone don't know how I've missed this thread I blame a brainless CRPS duh moment...

I have had some gastro problems for ages both before CRPS and after. I had my gallbladder removed not long after my second daughter was born (10 yrs ago eek), was diagnosed coeliac about 6 years ago, and have had various issues with meds affecting my stomach. Gabapentin was the worst and most dramatic - I was very ill twice on it, sickness, diarrhoea, cramping pain, dizzy etc and the doc thought it was a stomach bug first time, second time hit less than 2 weeks later - and no one else was getting ill, I wasn't eating anything weird or different to the family. I'd had to stop the Gaba while ill because I couldn't keep a thing down, and after the second time (thought I was going to die at one horrible point ) we decided to stop it and see. Well I got better so fast it wasn't even funny. Scares me to think what I might have gone through if he'd insisted I persevere...

I went onto a low dose of Lyrica and it's been much better, but the last two weeks I've had that upper left shoulder blade persistent ache/pain thing almost constantly, and it's worse a few minutes after I take my tablet... I'm so scared that I've started reacting to that too. It's not awful yet, but it's getting me down, especially so close to Christmas...

I need to get tougher on my diet again as it has slipped a bit recently with so much going on and me having a bad flare, but this ache hasn't happened before. I did think at one point that it was part of the CRPS aches and pains, senstivity and weirdness I've got going on in my left arm, side, chest and shoulder...but the last few days I've wondered if it's actually more gastric in nature - and reading this thread it makes more sense.

Vrae, I hope you are feeling a little better and doing ok today. You've had rough trot recently and deserve a break....as do we all!

Take care all x

Bram.
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

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Old 12-21-2013, 11:42 AM #2
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I am so frustrated. I have more pills to take then there are hours in a day. And nothing is touching the pain in my stomach. To give you an idea, within 15 min. of eating it is extremely painful in my stomach. (were my ribs split from each other) way up. Then my chest hurts, then my stomach cramps, then the nasuea, the the right side pain.

Had ultrasound, chest ct, and hidda scan. No gallbladder problems no aneruysm's. Yes had endoscopy which shows gerd and medium size hiatal hernia. This is not the same feeling as indegestion though. Had a colonoscopy, benign poyp in the cecum.

Having a stress test in January. (dr. is away for the holidays.) Pain dr. says he has not heard of abdominal rsd.
I almost went to hospital again last night. I got hungry today, ate, and now in tears from pain.l

wtf. sorry for the upset. But with my foot I could take pain meds and get some relief. I am not getting any relief with this. I need a new tummy for xmas please.
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Old 12-21-2013, 01:50 PM #3
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Alt that sounds so crazy I'm sorry things are so bad...

Just wanted to say hang in there, and I hope you get some kind of relief from the stomach pain soon. It's bad enough to watch every mouthful in normal times - at Christmas it is so mean. Hope you can have a few things that don't make you feel so bad.

Take care of yourself and try to enjoy Christmas as much as you can. I'll be thinking of you

Bram.
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
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Old 12-21-2013, 02:17 PM #4
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I've had stomach problems for a while. I think part of it is due to all the pills I take and part of it is due to the fact that I have gallstones and have had endometriosis. I rescheduled my appt with my endocrinologist (sp) for Jan 22nd to confirm. Maybe it's the meds you're taking or an ulcer. I would see a endo dr to see if they can find out. I hope you find out what it is and feel better soon.
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Old 12-21-2013, 03:41 PM #5
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Thank you for the kind words. I am trying to enjoy the holiday's. Lord knows I love to eat. lol. I guess it is time for a diet.

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Originally Posted by Brambledog View Post
Alt that sounds so crazy I'm sorry things are so bad...

Just wanted to say hang in there, and I hope you get some kind of relief from the stomach pain soon. It's bad enough to watch every mouthful in normal times - at Christmas it is so mean. Hope you can have a few things that don't make you feel so bad.

Take care of yourself and try to enjoy Christmas as much as you can. I'll be thinking of you

Bram.
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Old 12-21-2013, 09:13 PM #6
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Hope you feel better. I had something similar. It took 3 years but just dxed with celiac. No more tummy pain or rib pain as long as I am super careful with gluten.
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Old 12-23-2013, 12:51 PM #7
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can you just wake up one day and be gluten intolerable? I am not sure how that works.

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Hope you feel better. I had something similar. It took 3 years but just dxed with celiac. No more tummy pain or rib pain as long as I am super careful with gluten.
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Old 12-29-2013, 11:23 PM #8
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Quote:
Originally Posted by alt1268 View Post
can you just wake up one day and be gluten intolerable? I am not sure how that works.
Hey alt. I think you can develop the intolerance at any time. I am sure there are some precipitating events that lead to it. I had issues for quite some time before we realized it was gluten. I was tested for celiac many times and every time it came back negative. Dr and I decided I should try going gluten free and I noticed a huge difference...that was several years ago and I am still gluten free.
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