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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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Junior Member
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My daughter also has problems with syncope (she has CRPS as well). Her doctors describes it as a problem with not enough blood getting to her brain, so she gets dizzy and sometimes passes out. The main strategy has been to increase her blood volume, using the following measures:
1. 4000 mg salt per day, using Thermotabs (but some docs say to not use salt tablets and increase dietary salt) 2. Fludrocortisone 3. 1 liter of water/day Obviously, you would need to do #s 1 & 2 under the care of a doctor, but #3 you can try on your own. The other thing that was recently added that has helped a ton is compression stockings: http://www.brightlifedirect.com/jobs...-15-20mmhg.asp They keep the blood from pooling in her legs, so there is more available to get to the brain. Some insurance plans will cover them. All of these measures were put in place after my daughter was diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS), which was diagnosed primarily w/ a tilt table test, however, I think the same measures are used for a variety of similar autonomic dysfunctions. Good luck! Lori Quote:
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"Thanks for this!" says: | Angelina55 (02-18-2013), reluctant@thetable (02-19-2013) |
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