Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 02-23-2013, 05:22 PM #1
fbodgrl's Avatar
fbodgrl fbodgrl is offline
Member
 
Join Date: Dec 2012
Location: Eastpointe, MI
Posts: 259
10 yr Member
fbodgrl fbodgrl is offline
Member
fbodgrl's Avatar
 
Join Date: Dec 2012
Location: Eastpointe, MI
Posts: 259
10 yr Member
Default Hand cramping/getting stuck

My RSD is in my left arm and hand. This journey started 4 years or so ago when my fingers got stuck/cramped into a semi closed position ( like a claw). At that time I also was unable to extend my forearm. I couldn't even force the fingers out. I was dx with median nerve entrapment at the elbow. Eventually with therapy I got movement back and just had pain and numbness. It was corrected with my first surgery.

Pain returned and after that surgery I believe the RSD started. Although no one figured it out until I had yet another surgery.

Today I was reading a magazine and my hand clamped down in a death grip on the magazine. I was able to force my fingers open a little to get it out. Then it kept clamping down and I kept prying it open. I finally got it to stay open and back to my "normal" hand with the fingers curled in slightly which they have been since surgery 2.

Does this happen to anyone else? I seem to remember the doctor originally saying that the muscles kind of freak out because the nerve isn't telling them what to do (that was the original injury).

It is horribly painful and after that episode my pain level has increased a lot.

Is there a way to avoid this from happening?
__________________
Zookeeper
~Shelly~
fbodgrl is offline   Reply With QuoteReply With Quote

advertisement
Old 02-23-2013, 07:44 PM #2
stressedout stressedout is offline
Member
 
Join Date: Apr 2009
Location: NJ
Posts: 143
15 yr Member
stressedout stressedout is offline
Member
 
Join Date: Apr 2009
Location: NJ
Posts: 143
15 yr Member
Default same here

I also have RSD in my hand/left forearm and yes, my hand cramps up sometimes. I was having allot of problems with it cramping into a fist during the night. My Dr gave me flexeril, a muscle relaxant, and it has helped. I still get an occasional cramping where it is severe and I can't open my hand and it hurts like hell but it is less often.








Quote:
Originally Posted by fbodgrl View Post
My RSD is in my left arm and hand. This journey started 4 years or so ago when my fingers got stuck/cramped into a semi closed position ( like a claw). At that time I also was unable to extend my forearm. I couldn't even force the fingers out. I was dx with median nerve entrapment at the elbow. Eventually with therapy I got movement back and just had pain and numbness. It was corrected with my first surgery.

Pain returned and after that surgery I believe the RSD started. Although no one figured it out until I had yet another surgery.

Today I was reading a magazine and my hand clamped down in a death grip on the magazine. I was able to force my fingers open a little to get it out. Then it kept clamping down and I kept prying it open. I finally got it to stay open and back to my "normal" hand with the fingers curled in slightly which they have been since surgery 2.

Does this happen to anyone else? I seem to remember the doctor originally saying that the muscles kind of freak out because the nerve isn't telling them what to do (that was the original injury).

It is horribly painful and after that episode my pain level has increased a lot.

Is there a way to avoid this from happening?
stressedout is offline   Reply With QuoteReply With Quote
Old 02-24-2013, 12:37 AM #3
catra121's Avatar
catra121 catra121 is offline
Senior Member
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
10 yr Member
catra121 catra121 is offline
Senior Member
catra121's Avatar
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
10 yr Member
Default

I get this too. The biggest thing for me is to avoid things that trigger my RSD...primarily anything cold. I wear gloves all the time now because I am so sensitive to it. If my pain flares then my hand/hands claw up and I cannot straighten them out at all. Last time it happened was a couple of days ago when it was super cold out and my car door was frozen shut. I couldn't use my right arm at all and the hand clawed up. Made it to work and couldn't even take my coat off all day. When I got home from work I managed to get into a hot bath with Epsom salts, followed by ultrasound heat therapy, lidocaine cream, and a heating pad for a couple of hours...that finally got me to a point where I could move my arm.

I have found this can also happen if I hold things for a long period of time. I like to stitch but have had to adjust the way I "hold" the stitching frame so that I am more propping it on my fingers or on the table because holding it in my hand will cause the clawing and pain. This also happened when I tried to use a duster at work...only a couple minute in my hand clawed and there was ridiculous pain. So...cold and immobilization are what seem to do me in. If I can avoid those things then it's rare that this happens. Of course...it's impossible to avoid these things all together and still live your life.
catra121 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
fbodgrl (02-24-2013)
Old 02-24-2013, 01:14 AM #4
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
10 yr Member
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
10 yr Member
Default

You may need to adapt how you do things. You might need to move to an electronic reader for example.
LIT LOVE is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
fbodgrl (02-24-2013)
Old 03-02-2013, 11:34 AM #5
Cocoa14 Cocoa14 is offline
Junior Member
 
Join Date: Feb 2013
Posts: 66
10 yr Member
Cocoa14 Cocoa14 is offline
Junior Member
 
Join Date: Feb 2013
Posts: 66
10 yr Member
Default

Quote:
Originally Posted by fbodgrl View Post
My RSD is in my left arm and hand. This journey started 4 years or so ago when my fingers got stuck/cramped into a semi closed position ( like a claw). At that time I also was unable to extend my forearm. I couldn't even force the fingers out. I was dx with median nerve entrapment at the elbow. Eventually with therapy I got movement back and just had pain and numbness. It was corrected with my first surgery.

Pain returned and after that surgery I believe the RSD started. Although no one figured it out until I had yet another surgery.

Today I was reading a magazine and my hand clamped down in a death grip on the magazine. I was able to force my fingers open a little to get it out. Then it kept clamping down and I kept prying it open. I finally got it to stay open and back to my "normal" hand with the fingers curled in slightly which they have been since surgery 2.

Does this happen to anyone else? I seem to remember the doctor originally saying that the muscles kind of freak out because the nerve isn't telling them what to do (that was the original injury).

It is horribly painful and after that episode my pain level has increased a lot.

Is there a way to avoid this from happening?



When you say you couldn't extend your forearm, was it because it was too painful, or you just could not move it? My arm hurts to move it up or out away from my body.
Cocoa14 is offline   Reply With QuoteReply With Quote
Old 03-02-2013, 12:19 PM #6
fbodgrl's Avatar
fbodgrl fbodgrl is offline
Member
 
Join Date: Dec 2012
Location: Eastpointe, MI
Posts: 259
10 yr Member
fbodgrl fbodgrl is offline
Member
fbodgrl's Avatar
 
Join Date: Dec 2012
Location: Eastpointe, MI
Posts: 259
10 yr Member
Default

Quote:
Originally Posted by Cocoa14 View Post
When you say you couldn't extend your forearm, was it because it was too painful, or you just could not move it? My arm hurts to move it up or out away from my body.
It was locked/cramped up. If I tried to move it, it caused excruciating pain. If I got movement at all it was forced with the other hand and just went back to the original position it was stuck in.
__________________
Zookeeper
~Shelly~
fbodgrl is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Muscle Cramping- Tumeric Anyone? Nervous1 Peripheral Neuropathy 2 08-13-2012 11:47 PM
Cold weather/Muscle cramping gramE Reflex Sympathetic Dystrophy (RSD and CRPS) 5 12-09-2010 08:13 PM
possible help for cramping lurkingforacure Parkinson's Disease 2 10-16-2010 10:46 AM
Cramping in foot - MS thing? karousel Multiple Sclerosis 23 03-28-2010 08:23 PM
Muscle cramping? Hope15 Peripheral Neuropathy 6 01-22-2009 11:40 PM


All times are GMT -5. The time now is 04:44 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.