Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 03-16-2013, 05:53 PM #18
tos8 tos8 is offline
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tos8 tos8 is offline
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Join Date: Sep 2009
Posts: 286
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I understand what your saying completly, and people need to be cautios obvisly. These meds are HEAVY meds, meds that you dont take lightly and meds that shouldnt just be taken because your doc hands you them, and not everybody should take them or be on a combo like mine. I know having 2 muscle relaxants at large doses of course is always a risk, the 1 alone is a risk (soma) for anyone. The valium is also for my seizures, its complicated because taking opiots have a risk for seizures, i already have epilepsy, so then i have to take these heavy narcotics that add more risk to having seizures, but then i have an increasingly higher risk of having seizures when my pain isnt controled. So it really is a very fine balance and a hard one. I was a PT tech, so i knew about all the PM stuff befor my crap even happend. I would never recomend starting out on heavier narcs when just dxed. And I would never recomend a combo im on unless absoutly nessisary and then be sure you have all your drs watching all your meds. The combo im on was my last resort rout unfortantly, i had to go this path much earlier then I thought, but given my situation, not only is the rsd getting worse, so are my complications from the surgeries I had. So thats why ive landed where im at, and until I can get in to see Dr S. in philly in 2yrs to hopefully have some diffrent options, then im stuck where im at. And even then hes an RSD doc, he cant help the prevois damage thats already done and still going.

And im very sorry about your grandmother


Quote:
Originally Posted by Morgan Herritage View Post
Oh no tying here, I do understand. And I figure if a doctor feels it necassary, it probably is. And if I were in your situation, going peacefully in my sleep may be a blessing. And you will probably do fine on what you're on.
My grandma had MS for 20 yrs. Made peace with the fact it would be what kills her. Suddenly she finds out cancer has been eating her alive for some time. Suddenly she finds out MS won't be the death of her after all. Went through surgeries, therapys, could have squeezed 5 or so years out. But she took her daily ration of her oxy, soma and klonipin. She never woke up.
I am sorry for my bias, I know these meds help. I take them. But certain mixtures, I just can't help putting my $.02
Best of luck&i mean it.
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"Thanks for this!" says:
finz (03-16-2013), LIT LOVE (03-16-2013), Morgan Herritage (03-16-2013)
 

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