Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 05-02-2007, 09:03 PM #11
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Hey Desi,

What are they planning on giving you via IV? In the UK we have infusions of permidronate.

Love

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Hey Frogga.. the reason(If I go to Cleveland Clinic) is for different medications they wanna try, plus tests.. etc. maybe surgery?? I don't know??
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Old 05-02-2007, 09:15 PM #12
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Hey Desi,

What are they planning on giving you via IV? In the UK we have infusions of permidronate.

Love

Frogga xxxxxxxxxxxxxxxxx
Hey, Frogga, I am curious.. what is Permidronate?:
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Old 05-02-2007, 09:28 PM #13
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Default Hi Countblessings

I wanted to tell you that the day following my Stellate Ganglion Block I felt pretty good... My discomfort and pain returned about 22 hours after my block. I'm not able to work now, but as far as the block is concerned, I really don't think I would have had a problem working the next day as long as I didn't overdue anything. As far as going to school the night following your block. I would probably agree with your doc you probabley will want to take it easy afterwards... I would have to say I just wanted to veg on the couch and relax following mine.
...
Dawn

Desi- I'll Keep my fingers crossed that your blocks last longer and longer each time...
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Last edited by dawn3063; 05-02-2007 at 10:27 PM. Reason: Ooops.. Just a Fix...
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Old 05-02-2007, 09:44 PM #14
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Thank you Dawn!!!!
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Old 05-03-2007, 12:30 PM #15
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I end up sleeping that day & half of the next. The next day I can stay awake if I need to do so, and have had to do so, but I am tired. BUT then I also take 1200 mg of gabepentin (Neurontin) & 50 mgs of Lyrica every 8 hrs, on top of several other drugs that make one sleepy.

Sometimes if the burning is really bad as I have neuropathy really bad also in my feet & hands I take an extra 600 mgs of gabepentin 4 hrs into the 8 hrs. My PM doc is good about letting me adjust my meds a bit when needed. Of course I have cleared it with him before doing so also.

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Old 05-04-2007, 07:58 AM #16
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I end up sleeping that day & half of the next. The next day I can stay awake if I need to do so, and have had to do so, but I am tired. BUT then I also take 1200 mg of gabepentin (Neurontin) & 50 mgs of Lyrica every 8 hrs, on top of several other drugs that make one sleepy.

Sometimes if the burning is really bad as I have neuropathy really bad also in my feet & hands I take an extra 600 mgs of gabepentin 4 hrs into the 8 hrs. My PM doc is good about letting me adjust my meds a bit when needed. Of course I have cleared it with him before doing so also.

DebbyV
Wow, Debby.. 1200 mg of gabepetin?? I would be on my face!! That 75 mg. of Lyrica made me like a zombie, but I guess everyone is different. I wish you all the best Debby! I go have my 2nd. block this Tues. I hope this one lasts longer!! So far the 200 mg. of gabepentin I take before bed helps me so much!! I am going to ask my Dr. if I can take anymore of it during the day, as soon as I get up in the morning, it wears off. well Happy week end friend's.. I hope you all have a pain free day and my prayers and thoughts are with each and every one of you!! Love, Desi
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Old 05-04-2007, 08:17 AM #17
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desi,

someitmes the reason u can't do anything after a block is because of the sedation they use....i've had blocks without sedation (i actually prefer it that way) and could have done just about anything afterwards....i'm not a hero, i just hate the drunk feeling from sedatives and i tend to over-react to them anyway, so my doc is willing to let me keep myself calm with breathing exercises.

hope this helps
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Old 05-04-2007, 10:30 AM #18
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hi desi,
hope things are going well with the block and as for the gaba [aka neurontin], i take 400 mg three times a day and could not live without it. i have tried less and i have tried more, but with less i hurt and with more i am spaced out so that is the does for me. it is also the recommended dose for rsd in much i have read. joan
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Old 05-04-2007, 07:59 PM #19
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Originally Posted by JOAN_M View Post
hi desi,
hope things are going well with the block and as for the gaba [aka neurontin], i take 400 mg three times a day and could not live without it. i have tried less and i have tried more, but with less i hurt and with more i am spaced out so that is the does for me. it is also the recommended dose for rsd in much i have read. joan
Hi ya Joan!! My sister takes Lyrica75 mg. 3 times a day and she has never had a problem with it. I still have 29 of them left, as I took one (and only 1)and slept for a day and a half!! so not like me! So, I will give her the rest on Sunday. I went up to the Er this evening as my shoulder was on fire and the pain was like an ice pick being driven through it!! and the Dr. there said RSD only spreads from where you had your carpal tunnal surgery to the middle of your arm!! I'm like er.. ya.. ok!! she was in such a hurry. most of the Dr.'s don't even know what their talking about. she gave me a toradol shot.. took x-rays.the shot didn't even phase my pain!! so, I'm taking the neurton and will get my 2nd. block this coming Tues. thanks so much for writing me back!!
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Old 05-09-2007, 03:10 PM #20
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I have had RSD since a car accident in sept. '06. The doc's were in complete denial. My PT and Chiro are the ones who found it and yet the PM doc still did not beleave it. I had an IME done for the insurance company done in Jan.'07. He said it was RSD, then the PM doc decided to send me to a spine specialist for the nerve blocks. I have it in the whole left upper extremity, PT made it worse. As far as the nerve blocks the first one lasted 3 days was wonderful, but when it wore off, I was not ready for that, 2 days totally down. The next 2 did nothing except make the pain worse.
any advice all the nerve meds made me sick.
Michelle
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