Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 04-28-2013, 05:01 AM #2
Brambledog Brambledog is offline
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Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
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Quote:
Originally Posted by babyblues3 View Post
Hi,
I'm new here, I joined in hopes of getting some opinions. I don't know yet if I have RSD or not. I have a follow-up scheduled for My 9th. Think I'm going to try and make an appointment on Monday.
So anyway this is my situation.....
On March 7th I crushed and broke my Ulna along with breaking my Radius. The Doctor Casted it instead of doing surgery. The 6 weeks that I had a splint(3 weeks) and cast(3 weeks) I had tingling/prickly feelings in my arm and hand along with my hand feeling cold on the inside. I also had major swelling. They changed the cast thinking it was too tight. But the swelling never went down. Well now that the cast is off(4/19) I still have major swelling, purple blotchy, warm and at times a pale looking hand. Along with pain and a weird sensation in my hand that comes and goes. When I take a deep breath I get the same sensation that runs down my arm through my hand. I switched my Doctors right before I had the cast removed because I just didn't like him. I love my new Doctor he did my carpal tunnel surgery a few years back. He can't believe they didn't do surgery. I've been going for PT for 4 weeks, 3 times a week. Not making good progress. She even saw my purple hand and said it could be my sympathetic nerves which I can't control.
ANYONE HAVE ANY INPUT? PLEASE!!!!!!!!
Hi, sorry you've had such a rough time, that sounds like a nasty injury

Your symptoms certainly sound like they could be CRPS/RSD, but as always they could be caused by something different. I think you should get an appointment with a pain management doctor or neurologist who has experience of CRPS, and get a professional view of things.

In the meantime, try to avoid using ice as that can exacerbate CRPS symptoms and make things worse. Elevate your arm to help with swelling, but try to keep your hand moving regularly, even just small movements will help with blood flow and stop the CRPS (if it is that) running rampant. Also, try submerging your arm in a solution of Epsom salts and lukewarm water - Epsoms work on CRPS by blocking the calcium channels and pain signals, but they can help soothe non-CRPS pain as well. Just make sure there are no open wounds to the skin.

Good luck and push for a quick appointment. Whatever it is that's going on, you are obviously worried and need some reassurance and pain relief if nothing else.

Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
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