Sorry for the slow response, I was under sedation for nerve block. Have you already tried those? Sorry, I should remember since I know you already went through he!! with the trial SCS.
I hope your primary doc. gave you a referral to a different pain doc. That's how I found a good one - I went through 2 - asked for ANOTHER referral and think I have a good one now.
I'm glad you're eliminating as much negativity as possible. My P.T. gave me the best advice that you must be your own best advocate because so few people understand our condition.
No matter how much I just wish someone would speak out for me I try to remind myself what she said. Then I try to make myself say & do what I wish someone would do for me.
On top of your CRPS I know you've had incredible hurdles as well. My heart goes out to you and I hope you feel the support over the miles.