Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 06-17-2013, 12:48 AM #1
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Default Questions about breaking bones...

I have RSD type 1, diagnosed in my left hand and fingers in March 1995. I severed my long and ring fingertips on November 19, 1994. I was a very early case and have had good pain control. Concerning if my foot is broken, I have read that casting should NOT be done, what is a safe way to allow the bone to heal? I fell through a step and my ankle twisted side-ways. It is relentless pain and swelling. I am not sure if there is a fracture or a bad sprain, and will be seeing dr tomorrow: I was wondering about what I should expect. What should I not allow, I learned very quickly ice and rsd sufferers do not mix well. I would appreciate any advice about how best to treat my injured foot. Thanks in advance. Here's hoping for pain-free night and a beautiful day tomorrow.
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Old 06-17-2013, 01:14 AM #2
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No Hot and Cold water contrast therapy or aggressive physio either. Physio shuld be intensive, lots of it but gemtle, first sign of rising pain and stop. Everything I have read says casting is bad and can make it spread but don't know why.
If you have a bowl sit with your foot in lukewarm water, gentle massage is also known to help
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Old 06-17-2013, 11:52 AM #3
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When my foot breaks (four times now-go me!), they put me in a cam walker boot! It has air, and it holds the ankle still. It's just like a cast, heavier IMO, and I've never had a problem. My ankle/foot never breaks in the same place twice.

Hope this helps!

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Old 06-17-2013, 11:54 AM #4
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Oh, and I put ice on the back of my knee. It wasn't on the rsd area and it didn't spread at that time.
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Old 06-20-2013, 11:27 PM #5
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Default Thanks for your replies.

I am in ace bandage and using a cane. All seems to be going well. I appreciate your info it helped me a lot. This is the only time this has happened, I could not imagine doing this three more times. You're a
mazing.
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Old 06-21-2013, 02:34 AM #6
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My daughter was in a cam walker boot, too. It's nice because you can take it off when you're in a "safe" area, and gently move the foot around in ways OKed by your doctor. Then when you're out and around, you can put weight on it and "walk" a bit on it. Also, the liner is washable, which is a plus!
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