Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 06-20-2013, 11:03 PM #2
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Hi Vrae,

I too have that "live wire" pain as you describe. The first time I felt it was when I was lying in the recovery room following a complicated hip surgery and what I now know was a nerve injury that triggered the CRPS II in my right hip/thigh. For me the pains happen randomly througout the day and often bring tears to my eyes. I am sorry that you are having this pain.. it is awful. I have noticed that if I use my stationary bike more often that it seems to make these occur less frequently and reduce the intensity. I'm sure any type of therapy/movement would work if you are able.

I'm so sorry to learn you are full body.. do you mind sharing how long from diagnosis before it was full body? Was your nerve injury a complication of surgery or something else?

Kindly,
Tessa
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