Don't feel alone. We all have been ther or are there ourselves. We know what you mean. I went almost 10 yrs undiagnosed because all my Drs thought I was an addict after drugs. The only thing we can do is stay as positive as we can. Don't feel like you need to keep it all bottled up. We WILL let you vent if you need to. We have all done it. Geeze I did it just a couple days ago after not being on here for a while and everyone on here is very encouraging. Also talk to your family and tell them how you feel. I hadn't done that in a long with my wonderful husband and when I did he told me if I did it again he was gonna hand me over to my grandmother. Not a good thing lol. She is 94 been through 2 thigh repair surgeries and would tear me a new one for not talking. So talk to them. If they won't listen we are here. Its not as good as having someone there to hold you if they can without hurting you but we are here. Keep smiling and don't let it get you down too much.

I am 10+ years in and I would definite say that my pain has either changed or I finally have a better grip in dealing with it. I don't push myself to get out of the house and I don't pressure myself to do and keep up with everything. The first few years I was he'll bent on not letting people see what had happened and that I was weak. Ive gotten over that... It was chill out and stop being so hard on yourself time. So. that is different for me BUT I also feel that in the last year or so, the intensity, especially of the burning pain has lessened. It's easier to deal with.

Used to be I was so guarded, especially in public, and tried to keep anything from touching me in any way. But Ive kept up things like sensitivity, tactile tolerance things and not shied away from touching and feeling. I am thinking I read some where, sort of recently that the intensity does relax with time or most people, tough I am sure it is different for everyone.

Hand in there.